NEW
YORK, July 29, 2016
Today, Rachel Dolhun,
MD, vice president of medical communications at The Michael J. Fox Foundation
for Parkinson's Research (MJFF), will join a coalition of physicians for the
inaugural meeting of the Physicians Neurodegenerative Disease Working Group in
Washington, D.C. The group will discuss issues impacting patient access to
medical therapies and recommend educational resources and advocacy initiatives
with the goal of informing policymaking around breakthrough therapies for
neurodegenerative diseases, including Parkinson's disease (PD).
The
recently established Physicians Neurodegenerative Disease Working Group is
organized by the Alliance for
Patient Access (AfPA), a national network of physicians dedicated to
ensuring patient access to approved therapies and appropriate clinical care.
The working group aims to address a number of barriers to access, including
high out-of-pocket costs and insurance restrictions. To advocate for patients
with PD, Dr. Dolhun draws on her previous clinical experience as a movement
disorder specialist as well as her current work in communications at MJFF.
Parkinson's
disease affects one million people in the United States. No disease-modifying
therapy has yet been proven, but a number of potential drugs are in
development. New symptomatic treatments for both motor and non-motor symptoms
have recently reached market and many more are in late stages of clinical
trials. While working aggressively to accelerate therapeutic development, MJFF
is concurrently supporting Parkinson's public policy efforts to
reduce challenges to patients' access to care and new therapies. Dr. Dolhun's
participation in the AfPA conference represents MJFF's commitment to these
endeavors.
Learn
more about the Foundation's work to speed a cure for PD at michaeljfox.org.
About
The Michael J. Fox Foundation for Parkinson's Research
As
the world's largest nonprofit funder of Parkinson's research, The Michael J.
Fox Foundation is dedicated to accelerating a cure for Parkinson's disease and
improved therapies for those living with the condition today. The Foundation
pursues its goals through an aggressively funded, highly targeted research
program coupled with active global engagement of scientists, Parkinson's
patients, industry leaders, government research funders and regulators,
clinical trial participants, donors and volunteers. In addition to funding more
than $600 million in research to date, the Foundation has fundamentally altered
the trajectory of progress toward a cure. The Foundation increases the flow of
participants into Parkinson's disease clinical trials with its online tools Fox
Trial Finder and Fox Insight; sponsors a landmark, international study to find
reliable and consistent biomarkers of Parkinson's progression; promotes
Parkinson's awareness through high-profile events and outreach; advocates for
state and federal policies that support medical research and increased access
to health care; and coordinates the involvement of thousands of Team Fox
members and grassroots volunteers around the world.
For
more information, visit www.michaeljfox.org.
http://www.prnewswire.com/news-releases/michael-j-fox-foundation-vice-president-of-medical-communications-joins-alliance-for-patient-access-meeting-300306052.html?
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