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Sunday, November 30, 2014

Finding balance: Class helps Parkinson's patients manage disease



November 29, 2014 5:00 am  •  Molly Barari Journal correspondent




Every Friday from 11:45 a.m. to 1 p.m., Bill Van Heukelem splashes his way through the Parkinson’s Wellness Recovery in Water class at the Roosevelt Swim Center. The 73-year-old was diagnosed with Parkinson’s disease 12 years ago, and the class has done wonders to help alleviate his symptoms.
“I enjoy the water class at the Swim Center because we can work on balance without fear of falling and learn how our arms, trunk and legs are all connected and work together to help us balance on land,” he said.
The Mayo Clinic describes Parkinson's as a progressive disorder of the nervous system that affects movement. The disease develops gradually, sometimes starting with a barely noticeable tremor in just one hand. In addition to tremors, the disorder also commonly causes stiffness or slowing of movement. There is no cure for the disease, and it affects each person differently.
“Parkinson's disease not only affects movement but also interferes with things that others can't see, such as the digestive system, vascular system, sense of smell, and ability to sleep,” said Van Heukelem. “I have given up hunting because I can no longer hold the gun steady and my reaction time is slower and less predictable. I gave up golfing because I was too uncoordinated.”
Van Heukelem said he’s less affected by his symptoms when he’s riding his horse or exercising, which is why he makes time for the weekly water class. He appreciates that class instructor Bjo Schreier is knowledgeable about the bio-mechanics of Parkinson’s disease.
“She teaches us how to move efficiently and tone our muscles to increase our fitness and endurance,” he said. “She makes the class fun and makes us feel like teammates, so it’s interactive and as much a social event as it is a workout. We learn that we can do much more than we and our friends thought we could.”
According to Schreier, the class is designed to have dynamic movements. “We took our class to the water for more stability and more resistance (strength) work. It allows for fun falling. We practice super sounds – word groupings that require tricky diction – to help with learning the sensations of speech, both diction and volume. We also do memory work. Everyone picks a name of a vehicle and we throw the ball to someone calling his name. All our classes require very mindful attention in order to reestablish new neuro-pathways.”
Schreier said she’d like to cut through the stigma associated with Parkinson’s. “If you hear that you have Parkinson’s disease, your life is not destroyed; it is redesigned. I’d like the community to know that those with Parkinson’s are not mentally retarded, drunk nor disinterested. These are symptomatic conditions and the person is same person masked underneath these characteristics. It is our joyful duty to continue to relate to the person and not to his condition in order to continue relationships.”
Van Heukelem’s wife, Laurie, said people often don’t understand that those with Parkinson’s disease speak slower and quieter than others. It’s important to encourage them to speak louder and to take their time. She also said facial muscles are affected, so it takes more prompting to elicit a smile or other expression.
“Our grandson is the best at making Bill smile,” she said. “As Bill’s disease progresses, we come across bumps in the road, so to speak, but then we tend to adapt and seek ways to improve the quality of our lives. It is important for care partners to seek support from others who live with those who have Parkinson’s.”









http://health.einnews.com/article/237212179/totVGKcBW8Ugt_j3?n=2&code=ga_qGBxHZ2aVYO4P

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