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| Peter Raymond |
Impulsive and compulsive behaviour is a possible side effect of some Parkinson’s drugs. Although only a relatively small number of people experience this behaviour, it can have a significant impact on the person affected and those around them.
Impulsive and compulsive behaviour can affect some people who take dopamine agonists, but can also affect people who take other Parkinson’s drugs, in particular levodopa.
If you’re prescribed medication for Parkinson’s, it’s important that you and your specialist or Parkinson’s nurse discuss the potential risk of impulsive and compulsive behaviour.
Our Impulsive and compulsive behaviour in Parkinson’s monitoring and information tool can help with this.
This can also be used to monitor treatment over time.
Watch our film below and find out what you can do if you’re affected by impulsive and compulsive behaviour:
Transcript
What is impulsive and compulsive behaviour?
Impulsive behaviour is when a person can’t resist the temptation to carry out certain activities.
These are often activities that give an immediate reward, such as shopping or gambling.
Compulsive behaviour is when a person has an overwhelming drive or urge to act in a certain way, often repetitively, to reduce the worry or tension that they get from their urge.
Some people continue to act in this way, even if they no longer get any pleasure or reward.
In many cases, this behaviour is out of character and the person may carry out these activities without any thoughts about financial, social or legal consequences.
We have a dedicated impulsive and compulsive behaviour section on our online forum for people to share their experiences and get support.
Impulsive and compulsive behaviour is also referred to sometimes as impulse control disorder or ICD.
Types of impulsive and compulsive behaviour
This behaviour can be expressed in one or more of these ways:
- addictive gambling
- obsessive shopping – a preoccupation with buying things
- binge eating
- hypersexuality – a focus on sexual feelings and thoughts
Punding, or compulsive hobbyism, is when someone does things such as collecting, sorting or continually handling objects. It may also be experienced as:
- a deep fascination with taking technical equipment apart without always knowing how to put it back together again
- hoarding things
- pointless driving or walking
- talking in long monologues without any real content
Addiction to Parkinson’s medication, called dopamine dysregulation syndrome, is when a person takes more of a drug than is needed to control their Parkinson’s symptoms.
Are certain people more likely to experience impulsive and compulsive behaviour?
You are more likely to experience impulsive and compulsive behaviour if you’re:
- diagnosed with Parkinson’s at a young age
- male
- single and live alone
- a smoker
- someone with a personal or family history of addictive behaviour
If you’re aware that you, or a friend or relative, may be experiencing impulsive and compulsive behaviour, don’t live in denial. I don’t want anyone else to go through what I’ve been through.
If you have a history of ‘risk-taking’, such as gambling, drug abuse or alcoholism, you may be more likely to develop dopamine addiction.
This is where you take more of your medication than is needed to control your Parkinson’s symptoms (known as dopamine dysregulation syndrome).
It’s important to remember that not everyone will experience this side effect, so it shouldn’t put you off taking your medication.
You should work with your specialist or Parkinson’s nurse to find the most appropriate treatment option for you, and you should monitor the effects of this treatment together.
Spotting the signs of impulsive and compulsive behaviour
Impulsive and compulsive behaviour is not normal.
If you think you or another person with Parkinson’s may be experiencing impulsive and compulsive behaviour, tell your GP, specialist or Parkinson’s nurse right away, so they can help.
Someone experiencing impulsive or compulsive behaviour may not realise they have a problem. So it’s important that carers and family members note any unusual behaviour and tell the appropriate healthcare professional as soon as possible.
Some of this behaviour may be embarrassing and you may feel uncomfortable talking to a healthcare professional about it. But remember that they will have spoken to others with similar problems before.
You can use our Impulsive and compulsive behaviour in Parkinson’s monitoring and information tool to help with this discussion.
Treatment for impulsive and compulsive behaviour
Impulsive and compulsive behaviour can be controlled. Treatment may involve reducing the daily dose of Parkinson’s medication, having psychotherapy and looking into other types of Parkinson’s medication.
We do not advise anyone to stop taking or to change their Parkinson’s drugs without seeking the advice of their health professional.
Dopamine agonist withdrawal syndrome can happen if someone stops taking dopamine agonists suddenly. This can lead to symptoms such as depression, anxiety and pain.
You’ll find more detail in our Impulsive and compulsive behaviour in Parkinson’s information sheet.
Legal action against drug manufacturers
If you’re thinking about taking legal action against a drug manufacturer, there may be a limited time frame in which to do so.
Anyone considering this path would need to seek specialist legal advice as soon as possible.
Impulsive and compulsive behaviour research
We’ve published the results of 2 research projects we funded on impulsive and compulsive behaviour. These projects focused on risk factors and how the symptoms should be managed.
http://healthpassion.info/parkinsons-drugs-and-impulsive-and-compulsive-behaviour/
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