Wednesday, October 5th 2016
(KUTV) As many as one million Americans have Parkinson’s Disease, a progressive brain disorder that often starts as a tremor but over time can lead to muscle rigidity, and difficulty walking, talking and completing simple tasks.
Even though it is the second most common neurodegenerative disease following Alzheimer’s disease, basic information about PD is lacking, such as whether it affects ethnic or other population groups differently and if patterns of disease are changing.
Rebecca Starks of the Utah Parkinson’s Disease Registry stopped by 2News to tell us about the Parkinson’ Disease Registry and why it is important.
A registry capturing patients from an entire geographic area - especially one in which the disease is common - will be one-of-a-kind in the world. The registry will have direct benefits to healthcare planning for the state, and also for patients and researchers world-wide. The registry is designed to be an initial step in the conquest of this disease
The Registry Rule asks physicians/surgeons, and other health care practitioners as well as hospitals, health care facilities and other agencies diagnosing and treating PD patients to report their cases and allow access to their records by authorized Registry staff.
While entirely voluntary, reporting by patients is encouraged.
Video: http://kutv.com/features/utah-parkinsons-disease-registry-works-to-inform-public
http://kutv.com/features/utah-parkinsons-disease-registry-works-to-inform-public
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