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I HAVE PARKINSON'S DISEASES AND THOUGHT IT WOULD BE NICE TO HAVE A PLACE WHERE THE CONTENTS OF UPDATED NEWS IS FOUND IN ONE PLACE. THAT IS WHY I BEGAN THIS BLOG.

I COPY NEWS ARTICLES PERTAINING TO RESEARCH, NEWS AND INFORMATION FOR PARKINSON'S DISEASE, DEMENTIA, THE BRAIN, DEPRESSION AND PARKINSON'S WITH DYSTONIA. I ALSO POST ABOUT FUNDRAISING FOR PARKINSON'S DISEASE AND EVENTS. I TRY TO BE UP-TO-DATE AS POSSIBLE.

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Thursday, June 30, 2016

GZ Sobol’s Parkinson's Network exercise comes to Athens

By Kathi Nailling Staff Writer
June 30, 2016


The GZ Sobol's Parkinson's Network exercise class has come to Athens.
Cedar Lake Home Health and Hospice has brought the exercise class to the Living for the Brand Cowboy Church. Classes for people suffering from a multitude of neurological diseases are held starting at 12:30 p.m., Mondays, Tuesdays and Wednesdays.
GZ Sobol's exercise class offers the Parkinson’s Disease (PD)  community an opportunity to participate in an exercise class that was designed by a person with PD.
It's no secret that exercise is good for you. Because PD affects physical movement, it can be discouraging to undertake an exercise program. However, regular exercise can provide significant benefits to those with the disease.
Caren Anthony, marketing manager at Cedar Lake Home Health, became a certified Parkinson Disease exercise instructor after completing the GZ Sobol's Parkinson's Network instructor class.
“I don't know who gets more excited about our class, me or the people that we are helping,” said Anthony. “We clap, cheer, laugh, holler and sometimes cry. These people are amazing, and I love them all.”
Parkinson’s Network provides exercise classes for People with Parkinson’s Disease (PWP), MS, TBI, neurological disorders and those that want to age, well.
Some Parkinsonians have found the benefits of exercise to include improved ability to speak and swallow. A heightened sense of well being is an almost guaranteed by-product of regular exercise.
The exercise program is based on the Gary Sobol technique. Sobol has a vision that every person in this country with Parkinson’s should have a place that they can go to, to take these classes, and improve their quality of life and restore lost functions.
Anthony says she can attest to the benefit of the Parkinson exercise class.
Anthony teaches the class held at the Family Fitness of Gun Barrel City on Monday, Wednesday and Fridays from 12:30 p.m. to 2 p.m.
All exercise classes hosted by Cedar Lake Home Health are open to the public. These are free classes for those who can benefit from the exercises.
http://www.athensreview.com/news/local_news/gz-sobol-s-parkinson-s-network-exercise-comes-to-athens/article_6f72ceda-3f07-11e6-a8fa-ef51de8ef0b7.html

Parkinson’s Patients See Benefit From Movement, Dance Therapy

June 30, 2016 
NEW YORK (CBSNewYork) — When you think of Parkinson’s disease, you think of tremors, shaking, and maybe even the inability to move – and you probably don’t think of exercise and dancing.
But as CBS2’s Dr. Max Gomez reported, getting Parkinson’s patients moving to moving to music might be just what the doctorordered.
Probably the most disabling part of Parkinson’s is not the tremor. It is the inability to start moving – patients tend almost to freeze in place.
So how can they exercise or dance?
But that is exactly what is happening at a series of movement classes for Parkinson’s patients at the JCC Manhattan. It seems that music may activate brain circuits that bypass those damaged by Parkinson’s, and that is good for their physical health.
“Patients with Parkinson’s who move in all sorts of ways will slow the progression of their disease,” said Dr. Rebecca Gilbert of the Fresco Institute at NYU Langone Medical Center. “Now, they go to their physician, they’re prescribed medications, but they’re also prescribed exercise, because that is a huge component of controlling the disease.”
But the benefits go far beyond the physical for the people taking the classes. It is about spirit and regaining the confidence that Parkinson’s often takes away.
“It makes me think about my movements,” said Parkinson’s patientJune Rose. “When I’m going to do something, I think, ‘Yes, I did that in class.’”
“This has helped simply by making it possible for me to have that much more confidence than I had earlier,” said Parkinson’s patient Jim Iredell.
The classes incorporate a variety of other techniques to help Parkinson’s parents with their various issues. There is movement, of course, as well as breathing, and especially balance – since falls are a big problem for the students.
Because the class participants are at many different stages of their disease, it is also important for JCC senior director Caroline Kohles to customize the movements in the class.
“And so some people will sit, some people will stand, some people will hold onto a chair, some people will move around – all at the same time,” Kohles said. “It’s kind of like life. You know, they’re all mixed in together.”
All the students are encouraged to push themselves at least a little bit to work to their full capacity, which will have the most benefit.

To see Video: 

http://newyork.cbslocal.com/2016/06/30/parkinsons-dance-therapy/?

Dissatisfied with Your DBS?





In the large number of Deep Brain Stimulation (DBS) surgeries performed—135,000 reported by Medtronic  in 2015—dissatisfaction with this surgical treatment for Parkinson’s disease can sometimes occur. If you have DBS and you aren’t satisfied with it, try to put your worry aside so you can focus on fixing it!
Two clinics dedicated to DBS troubleshooting offer useful information on their websites:

University of Florida DBS Troubleshooting and DBS Failures Clinic 

The University of Florida Center for Movement Disorder and Neurorestoration has a DBS Troubleshooting and DBS Failures Clinic. The clinic offers its services to patients from all over the United States and also to international patients– and to date has evaluated over 500 deep brain stimulation leads and has re-operated and re-programmed dozens of patients.
The clinic website explains step-by-step how a second opinion is provided, and lists selected UF Center publications on DBS failures and DBS troubleshooting. The clinic is co-directed by Michael S. Okun, and Christopher W. Hess, MD. Okun is the Administrative Director and Co-director of the Center for Movement Disorders and Neurorestoration. He has researched and written extensively about DBS, both in his affiliation at UF and in his role as the National Medical Director for the National Parkinson Foundation since his appointment in 2006. Christopher W. Hess, MD, is Assistant Professor of Neurology at the University of Florida College of Medicine and he directs the Veterans Administration Parkinson’s Disease Consortium Center at the North Florida/South Georgia VA Medical Center.

Movement & Neuroperformance Center of Colorado DBS Troubleshooting Clinic

The Movement & Neuroperformance Center of Colorado has a comprehensive DBS medical clinic in Denver Colorado. Co-founders Dr. Monique Giroux, Medical Director and CEO, and Sierra Farris PA-C, Director Deep Brain Stimulation Services work with a team of specialists on DBS troubleshooting. Farris also authors  Deep Brain Stimulation Insights, an insightful website on DBS problem solving. Farris has investigated 300 cases of DBS dissatisfaction.
On the Brain Stimulation Insights website, there’s a section on troubleshooting problems by Farris and Giroux that includes a study-based breakdown of the factors that lead to dissatisfaction with DBS. The primary factors include:
suboptimal stimulation settings
disease progression
inappropriate patient selection
hardware damage
lead malposition
When you’re deciding what is wrong, you’ll want to review these factors as they apply to your own history. Farris writes, “Seeking help from a highly experienced DBS expert team is encouraged if DBS isn’t working as expected, especially if revision surgery is planned.”

Get a second opinion

Check out the top hospitals in your area and consider asking a neurosurgeon and a movement disorder specialist at one of them for a second opinion. They will need all of the actual imaging (CDs of MRIs, CTs), and neurologist programming information to access your case. A second opinion brings you peace of mind to know that you’ve double-checked your situation.

Keep a positive outlook

Sometimes it is hard to look at your own attitude towards PD and DBS, but try to be honest with yourself. Are you a glass-half-empty type of person? Negativity and bad attitude will not do for you as you try to improve your DBS. Now is the time to have faith in yourself, and your medical team. Your DBS will get better. There are clinics and doctors out there dedicated to making your DBS work. You need to be positive, patient, steadfast, and dedicated to finding the answers that work for you. You can do it.

About Parkinson’s Women Support:

 The mission of Parkinson’s Women Support is to offer moral support, encouragement and camaraderie for women who are Parkinson’s disease patients. 

Check out our Facebook pagehttps://www.facebook.com/parkinsonswomen

https://parkinsonswomen.com/2016/06/28/dissatisfied-with-your-dbs/

Tanya Simuni from Northwestern Medicine: Treating Parkinson's Disease a Common Problem Facing Clinicians

 

 
 
 

With projections that the number of patients with Parkinson's disease could double in the near future work is still being done to find effective treatments and cures for the condition. Tanya Simuni, MD, from Northwestern discussed what can be done for patients with the condition now and what she hopes to see in the future for potential cures that may be developed. While symptom management is making strides Simuni said permanent fixes have not yet been found.  




http://www.hcplive.com/medical-news/tanya-simuni-from-northwestern-medicine-treating-parkinsons-disease-a-common-problem-facing-clinicians

Deep Brain Stimulation in Older Patients: Safe

Jeannette Wick  



In Parkinson’s disease (PD), medication-based therapy efficacy wanes and “wearing off” symptoms develop over time. Deep brain stimulation (DBS) is an emerging major treatment modality in PD, targeting the ventral intermediate thalamic nucleus for tremor-dominant PD and the subthalamic nucleus and the globus pallidus interna for akinetic-rigid disease. DBS acts as an adjunctive measure with medication to reduce dyskinesia and daily doses; it does not replace medication. 
An article published ahead-of-print in World Neurosurgery indicated that DBS effectively improved motor function and levodopa equivalence daily doses (LEDD) in Parkinson’s disease patients 70 years and older. 

This single center retrospective study used the Unified Parkinson's Disease Rating Scale III to measure motor function. 

The researchers quantified medication requirement with levodopa equivalent daily doses. DBS decreased average LEDD from 891.94 mg to 559.6 mg and average doses per day from 11.54 to 7.97. Follow-up beyond two years was rare but the researchers predicted DBS’ efficacy to diminish over time. Patients’ UPDRS-III scores decreased from 31.79 pre-operatively to 15.5 postoperatively. This reduction in motor symptoms is consistent with prior studies in all and older patients. 

Adverse operative outcomes (e.g. hardware infections, gait disturbances, and speech problems) were similar to the rates experience in younger cohorts. The study authors call for long-term follow-up beyond the average 23.5 month follow-up currently considered standard in studies. Careful selection of surgical candidates allows access to the motor function and dose reduction benefits of deep brain stimulation in patients over 70 years old.


 http://www.hcplive.com/medical-news/deep-brain-stimulation-is-older-patients-safe

Telemedicine Shows Promise for Parkinson’s Disease Care at Rush University Medical Center

Daniela Semedo, PhD
JUNE 30, 2016

Ann Johnson, a retired veterinarian diagnosed with Parkinson’s disease (PD) almost a decade ago, usually travels 130 miles from Champaign to Chicago to be treated by Dr. Christopher Goetz at the Parkinson’s Disease and Movement Disorders Center at Rush University Medical Center.
But her most recent appointment lasted less than 30 minutes and occurred in the quiet of her own living room.
Johnson is part of a pilot telemedicine project that will potentially allow many of her medical appointments to be conducted from her home via a secure live-streaming video.
“As a medical professional, I know the importance of developing innovative approaches,” Johnson said according to a recent news release. “When you see your vital signs right on the screen, it’s really quite neat.”
In telemedicine, medical information is exchanged from one site to another via electronic communications. Telemedicine includes a growing variety of applications and services using two-way video, email, smart phones, wireless tools and other forms of telecommunication technology.
But the diagnosis and clinical monitoring of Parkinson’s and other movement disorder progression is almost entirely based on clinical visual observation because no brain scans or blood tests can establish the diagnosis.
Rush University Medical Center helped create visual criteria many years ago for video technology that helps movement disease diagnosis and tracking disease progression.
Goetz was keen to demonstrate that the same subtle symptoms of PD progression or disease improvement evaluated in the clinic office, such as tremors, change in gait or in fine finger movements, could also can be evaluated in real-time through telemedicine.
Since October 2015, more than 20 patients in the medical center’s telemedicine project have used their own computers to link to Rush for virtual appointments with their neurologist. Presently, Goetz and neurologist Dr. Katie Kompoliti use the method, but other neurologists will be added to the virtual approach soon.
Patient feedback has been very positive.
Instead of signing in at the clinic, they instead log into Rush’s online health system to open a secure video feed. Neurologists then assess the patient face to face like a typical medical visit.
“Ninety-five percent of the information I gather is visual. Thus, with telemedicine visits where I can see and hear my patient right in front of me on the computer screen, there is no decline in the quality of information I gather,” Goetz said.
The term “virtual visit”, sometimes used to refer to telemedicine, is not acceptable to Goetz.  When he sees patients via telemedicine, the relationship is truly one on one. The visit is not a simulation.
“It’s not like they are here, they are here – just in two dimensions,” he said. “We have our interaction right here in my office, but they have not had to travel.”
The time spent by patients via telemedicine versus clinical visits has also been considered, especially when actualizing the financial cost of heath care in clinical settings.
Results from a research study published in 2015 in the American Journal of Managed Care, showed that a typical office visit takes an average 121 minutes but only 20 of those minutes are spent with the doctor. The rest is waiting – which makes the patient time more valuable in dollars than clinician time.
For patients with advanced movement disorders who cannot drive, the cost of human time spent at medical appointments can be doubled because a second person is needed to bring the patient to the appointment.
Patient Alan Lundin said his medical visits to see Goetz in person, take him and his wife nearly 13 hours because they travel from Rockford.
“That’s pretty much the whole day spent on something that now takes half an hour,” Ludin said.
At Rush, telemedicine appointments are not charged to patients because the service is currently not covered by insurance in Illinois. Only half of  U. S. states currently require private insurers to cover telemedicine the same as in-person visits. For now, Rush absorbs the price of the pilot telemedicine project.
“In order to prepare ourselves for the future, we are perfecting the system,” Goetz said. “Rush had the vision to set up the infrastructure and have everything in place so that when the day comes that we can be reimbursed for providing these services on a wider scale, we’ll be able to launch immediately.”
Dr. Brian Patty, Rush’s chief medical information office and chairman of the Telemedicine Steering Committee, said the pilot project will continue to meet patient needs.
“When the laws catch up with the technology, Rush will be ready,” Patty said,.
http://parkinsonsnewstoday.com/2016/06/30/telemedicine-shows-promise-parkinsons-disease-care/

Stepping Out for Parkinson's helps raise research funds

June 30, 2016

Best friends, Barb Stonecipher of Round Lake, left, and Jodi Mara of Grayslake started the Stepping out for Parkinson's Walk in Round Lake after Mara was diagnosed with Parkinson's and wanted to take control of her life and try to do something to help find a cure.

Courtesy of Outlook Marketing Services Inc

On June 12, runners and walkers alike, made their way through the Nippersink Forest Preserve on a 1.5 mile walk for the Sixth Annual Stepping Out for Parkinson's Fun Run and Walk, to help raise funds for Parkinson's disease research at NorthShore University HealthSystem Neurological Institute. Physicians and scientists at NorthShore are helping to identify the best medication to prevent and treat the disease.

Following the walk, family and friends gathered for lunch and games and had the opportunity to participate in a raffle and bid on an array of silent auction items.

Behind this annual event are longtime friends Jodi Mara of Grayslake and Barb Stonecipher of Round Lake. Mara was diagnosed with Parkinson's disease 10 years ago, and Stonecipher has been right by her side ever since, supplying plenty of emotional support.
A few years after the diagnosis, Mara didn't want to sit around and allow the illness to take control of her life and wanted to do something to help find a cure, so she and Stonecipher started this tradition.

"The Stepping Out for Parkinson's walk has taken place on the second Sunday of June for the last five years, and, with the unending help, energy and support of my good friend Barb, it will continue to take place each year at this time," Mara said.

"The event gives me inspiration, purpose, and strength to my fight this unwelcome partner in my life, and I hope that the funds raised through the event will help doctors and other researchers win the battle against this awful disease."

For more information about NorthShore, or ways to support the innovative care and research being provided by NorthShore Neurological Institute, call (224) 364-7200 or visit foundation.northshore.org. Additional details on the Stepping 
Out for Parkinson's Walk can be found at sofpd.myevent.com.

http://www.dailyherald.com/article/20160630/submitted/160639967/

Casale's Muhammad Ali Jewelry line to benefit Parkinson's Foundation

By Dr. Gracelyn Santos | gsantos@siadvance.com 
June 30, 2016

Cory Schifter of Casale Jewelers has created a Muhammad Ali line of inspiring jewelry and will donate part of the proceeds to the Parkinson's Foundation

STATEN ISLAND, N.Y. 

"Don't count the days; make the days count."
"I hated every minute of training, but I said, 'Don't quit. Suffer now and live the rest of your life as a champion.'" 
"Service to others is the rent you pay for your room here on earth."
These are just three quotes from the late, great champion boxer, Muhammad Ali, who passed away earlier this month.
To honor the sports legend, community activist and businessman Cory Schifter of Casale Jewelers in Dongan Hills has created a Muhammad Ali jewelry line, and will be donating part of the proceeds to the Parkinson's Foundation
Cory Schifter of Casale Jewelers has created a   Muhammad Ali line of inspiring jewelry and will donate part of the proceeds to the Parkinson's Foundation. 


         
Ali was diagnosed with Parkinson's in 1984 at the age of 42, and is one of the most high-profile people who battled the condition. His brain injury is believed to have caused by repeated blows to the head.
The Schifter family has been in the retail jewelry business for 30 years. The custom design business, managed by his brother Daniel Schifter, has been in business for over 20 years and are in over 3,000 jewelry stores worldwide.


When designing the Muhammad Ali line, the brothers had the best of both worlds since Daniel handles the manufacturing and Cory is in charge of the retail end.

The Schifters have had the license to sell the Muhammad Ali pieces since late 2015. 
"We had our launch to jewelers in Las Vegas on June 2nd, coincidentally one day before Ali passed,"  Cory explained.  "We were sitting at dinner discussing the launch party Friday night when we received the announcement on our phone. 
"We had a launch party planned for Saturday. It turned more into a tribute to the legend."  In attendance were boxing champions Zab Judah, Vinny "Pazmanian Devil" Paz and Mia St. John.
Cory Schifter of Casale Jewelers has created a Muhammad Ali line of inspiring jewelry and will donate part of the proceeds to the Parkinson's Foundation. 
According to Schifter, Muhammad Ali was an inspiration to many in that he never wavered on his beliefs regardless of the consequence. "He was a fighter just like we all are," he said, "And a great businessman that sold out fights and made a name for himself that nobody will forget.
"Ali is the single most iconic athlete in the history of United States of America," he said, "So having opportunity to capture his spirit and whathe stood was something we couldn't pass up.  He was also very big into the community and helping others which is how we do business as well, which makes it personal for us." 
Sales have been brisk, with customers  ordering pieces as graduation and special-occasion gifts for friends and family, as well as to commemorate the essence of the boxing great. Popular items are the pendents and cuff links.
According to Cory, the items with Ali's quotes are selling best: "Live Your Life As a Champion,"  "A Man with No Imagination Has No Wings,"  for example.  


Cory Schifter has been a staple at countless Staten Island charities, known for his generosity, and readily donating his time and jewelry, totaling in the hundreds of thousands to worthy fundraisers and was recently named a Paul Harris Fellow, the highest honor bestowed by Rotary International.

For more information, contact Cory at 718-351-8300.  Casale Jewelers is located at 1639 Richmond Road in Dongan Hills or visit TwentyThree9.com.


http://blog.silive.com/gracelyns_chronicles/2016/06/jewelers_earmark_muhammad_ali.html