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I HAVE PARKINSON'S DISEASES AND THOUGHT IT WOULD BE NICE TO HAVE A PLACE WHERE THE CONTENTS OF UPDATED NEWS IS FOUND IN ONE PLACE. THAT IS WHY I BEGAN THIS BLOG.

I COPY NEWS ARTICLES PERTAINING TO RESEARCH, NEWS AND INFORMATION FOR PARKINSON'S DISEASE, DEMENTIA, THE BRAIN, DEPRESSION AND PARKINSON'S WITH DYSTONIA. I ALSO POST ABOUT FUNDRAISING FOR PARKINSON'S DISEASE AND EVENTS. I TRY TO BE UP-TO-DATE AS POSSIBLE.

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Monday, July 11, 2016

‘Night for a Cure’ Raises Nearly $300K

July 10, 2016

Ann Hanley with an American Pharaoh halter

Night For A Cure, held Sunday night at Fasig-Tipton in Lexington, Kentucky, to benefit the Ann Hanley Parkinson’s Research Fund, raised almost $300,000 to fund research into the disease at the University of Kentucky.
Hanley, the wife of WinStar’s General Manager David Hanley, was diagnosed with Parkinson’s at the age of 50 and is currently working with a research team led by Dr. Greg Gerhardt and Dr. Craig Van Horne at UK. The research team has made substantial progress in developing a new surgical technique to drastically reduce the symptoms of Parkinson’s disease through procedures that include deep brain stimulation and nerve grafts.
Recognizing the challenge of adequate funding for such research, Hanley established the fund in 2015 to ensure that the groundbreaking work being conducted by Dr. Gerhardt, Dr. Van Horne and their team could continue.
Fasig-Tipton, Coolmore and WinStar teamed up to host the party to raise money for that research.
“This partnership between the Thoroughbred industry and the Brain Restoration center at UK is already having a profound effect on our community,” Mrs. Hanley said. “It has brought attention to our cause and allowed us to raise funds which will ultimately speed us on our way to a better treatment course and possible cure for this devastating and incurable disease. The research conducted at UK doesn’t require any drug trial, therefore no funding available.
She continued, “In a unique and different approach Dr. Van Horne utilizes the body’s own repair system by grafting a piece of the peripheral nerve into an area of the brain during Deep Brain Stimulation surgery. The patient is the only beneficiary, there is no a financial reward for anybody, hence the difficulty in funding. This kind of research science can take years and lifetimes. Patients, myself included, don’t have time, the clock constantly ticks and we are very aware of it. As a front seat spectator in this research I feel an overwhelming sense of gratitude to the doctors, surgeon and research scientists at UK who work to end Parkinson’s with passion and intensity. How can we deny them the opportunity to achieve their goals and how could we possibly forget the hundreds and thousands of patients whose lives we can change and even save? With this new funding we can move ahead with our research, which means we can perform more surgeries. We have no shortage of willing patients, the number on the waiting list grows daily. To date we have preformed 33 surgeries using the peripheral nerve graft and the results are very promising.
Hanley concluded, “I can’t begin to thank the many wonderful people who have loved and supported me with this cause. It could never have happened without WinStar, Coolmore and Fasig-Tipton which includes the Troutt family, Elliott Walden, Dermot Ryan, Aisling Duignan, Boyd Browning, Anna Seitz, Amy and Caroline Walsh at WinStar and a host of others.”
The event was attended by over 300 people, who sponsored tables, enjoyed music by The Wooks and Steve Norman & the Shades of Grass, and bid on auction items. Those items brought:
*S F Bloodstock had the winning bid of $8,000 for box seats for Travers S. at Saratoga, donated by Fasig-Tipton.
*Hagyard’s bid $3,200 for a Jefferson’s Bourbon private tasting, courtesy of Jefferson’s Bourbon.
*A framed American Pharoah halter, donated by Ashford Stud and the Cross Gate Gallery, brought a bid of $6,000 from Carrie Brogden.
*A season to the recently retired Grade I winner on dirt and turf, Mshawish (Medaglia d’Oro), courtesy of Taylor Made Farm, was purchased by Dr. Pug Hart for $17,000.
*Woodford Thoroughbred bid $7,500 for a weekend of racing at the 2016 Keeneland Autumn Meet, including box seats and a weekend stay at the WinStar guesthouse.

“What I love about our industry is the generosity that is shown to our horses, our people, and even people that we don’t even know,” said WinStar’s CEO, Elliott Walden. “This night is an example of that. Parkinson’s patients that don’t know how to spell ‘horse’ will be impacted greatly by this night.”
“We’re delighted to be a part of this very good cause,” said Coolmore America’s Director of Sales, Charlie O’Connor. “We are very appreciative of everybody in the horse community and the way they got behind this fundraiser, and how supportive they were our colleague and friend.”
Parkinson’s is a degenerative disease that causes the breakdown or death of neurons in the brain. With no exact known cause, Parkinson’s develops gradually and causes a variety of symptoms, including muscle rigidity and tremors, as well as difficulty moving and unstable posture. It is estimated that about one million Americans and 10 million people worldwide have the disease.
For more information on the fund, click here: https://vimeo.com/166832741/48cd4be379. To donate, make checks payable to the Ann Hanley Fund for Parkinson’s at The University of Kentucky, and mail to Ann Hanley, c/o WinStar Farm, LLC, 3001 Pisgah Pike, Versailles, KY 40383
http://www.thoroughbreddailynews.com/night-for-a-cure-raises-nearly-300k/

Sunday, July 10, 2016

A POTENTIAL CASE OF REMISSION OF PARKINSON'S DISEASE


July 10, 2016



A clinical study has published details of a 78 year old man who, despite having typical Parkinson's Disease, no longer has Parkinson's Disease symptoms.

Researchers have presented the case of a 78-year-old male who, 16 years ago, was diagnosed with Parkinson's Disease by a neurologist. The patient initially presented with left-hand tremor, stooped posture, shuffling gait, and frequent falls, which eventually progressed to bilateral motor symptoms after 3 years.

However, since 2012, his symptoms and signs have almost completely remitted, and he has been off all pharmacotherapy for that time. The accuracy of the initial Parkinson's Disease diagnosis is supported by : an appropriate clinical presentation, history of positive response to Sinemet, and an abnormal SPECT DaT scan. This case therefore suggests the possibility of the remission of symptoms in some patients. The authors propose that the patient's long history of meditation may have been one of the contributing factors of his improvement because meditation has been shown to release dopamine.

Parkinson's Disease is primarily due to insufficient dopamine. There is a tendency for Parkinson's Disease symptoms to get gradually and progressively worse. However, dopamine levels, even in Parkinson's Disease, fluctuate continuously. There is therefore no reason why dopamine levels and therefore Parksinson's Disease can not improve.

Reference : Journal of Complementary Integrative Medicine [2016] [Epub ahead of print] (K.Smart, R.Durso, J.Morgan, P.McNamara)

Complete abstract :
http://www.ncbi.nlm.nih.gov/pubmed/27379905

http://www.viartis.net/parkinsons.disease/news/160710.pdf mail@viartis.net
©2016 Viartis 


http://www.viartis.net/parkinsons.disease/news/160710.pdf

Parkinson's treatment at Blessing now available to outpatients

By  Herald-Whig

Posted: Jul. 10, 2016 


QUINCY, IL 
Blessing Hospital is expanding a nationally known physical therapy program for Parkinson's disease patients.
The LSVT BIG program has been available to Blessing Home Care patients for two years, but effective July 27 the therapy program will also be available to any outpatient with a Parkinson's diagnosis and an order from their physician.
"This is great news for Parkinson's patients," said Cathy Hilgenbrinck, RN and director of Blessing Home Care. "LSVT BIG is ideal for someone newly diagnosed, to learn what to do to maintain their mobility, flexibility, balance, and range of motion for the long term, and at the same time preserve their quality of life."
LSVT BIG training takes place four times a week for four weeks, with maintenance visits following completion of the program.
LSVT stands for Lee Silverman Voice Treatment. Silverman, a nationally known therapist, invented two programs for Parkinson's patients: LSVT LOUD for speech disorders and LSVT BIG for mobility issues.
Parkinson's disease is a chronic and progressive disorder involving the malfunction and death of vital nerve cells in the brain, called neurons. This causes a disconnection in the brain between vision and feeling, perception and reality leading to miscalculated movements.
LSVT BIG teaches Parkinson's patients to compensate for their mobility challenges by making bigger, longer and stronger movements, in other words, "BIG" movements.
For more information, contact Blessing Home Care at 217-223-8400, ext. 4901.
Reaccreditation
The Blessing Cancer Center's Radiation Oncology Department was reaccredited by the American College of Radiation Oncology. The Radiation Oncology Department undergoes the reaccreditation process every three years. The Blessing Radiation Oncology Department has been accredited since 2001.
ACRO strives to ensure the highest quality care for radiation therapy patients and promote success in the practice of radiation oncology. Accreditation is a voluntary process in which professional peers identify standards indicative of a quality practice, and an audit is conducted to assure that the standards are followed.
The hospital's radiation department is led by two full-time board-certified radiation oncologists, assisted by a team that includes a medical physicist, two dosimetrists, radiation therapists and nurses.
Nursing scholarship/established
Blessing-Rieman College of Nursing and Health Sciences students have established a scholarship in the name of the late Virgil E. Kendrick.
Born July 16, 1948, in Beardstown, Kendrick farmed in Brown County until he passed when he was 32 in 1981. An anonymous donor established the memorial scholarship to provide a student meeting the qualifications with a gift card to purchase food from the Blessing Hospital Cafeteria, Tea Room or Blessing Health Center Snack Shop.
The scholarship will benefit one student annually, with preference given to students who live in the Illinois counties of Brown, Schuyler, Morgan or Scott. As the scholarship fund earnings increase, more recipients may be designated annually.
Anyone interested in donating to the Virgil E. Kendrick Scholarship may do so through the Blessing Foundation, 1121 Broadway, Quincy, IL 62301. A secure online donation may be made at BlessingHealthSystem.org, then selecting the "Blessing Foundation" and "Donate Now."
For further information or to ask questions, call 217-223-8400, ext. 4800, or email ann.dickson@blessinghealthsystem.org.

http://www.whig.com/article/20160710/ARTICLE/307109961#

Stop the Scam!

Kunkle, Fredrick
June/July 2016

Elderly parents or family members with cognitive impairments are especially vulnerable to financial abuse. Safeguard your loved ones with these strategies.






The telephone seemed to ring all the time for Robert Podrasky's elderly father. Too late, Podrasky figured out why: His 85-year-old father was being scammed.
Callers had invited his father to play a “quasi-legal international lottery,” which required him to transfer money using Money-Pak reloadable debit cards. After several small transfers, Podrasky's father hit the jackpot—or so the callers said. They told him he had won $9 million, but would have to pay taxes on the winnings first.

By the time anyone realized what was happening, Podrasky's father, a former insurance executive who lives in New Jersey, had lost $400,000. Law enforcement officials said it would be next to impossible to track down the perpetrators, who operated from foreign countries.
What was most upsetting was that, in retrospect, the warning signs were there. “The [bank] teller had a feeling something was going on,” says Podrasky, who added that he was told that privacy laws prohibited bank officials from sharing information about their suspicions. “My dad had no recourse.”
In addition to telephone scams, con artists also exploit older people's unfamiliarity with social media. In what some people call the “Hi, Grandma” scam, con artists glean bits of information from social media accounts and then contact a grandparent. The scammers pose as grandchildren, saying they've run afoul of local laws in a foreign country and need bail money right away—and they don't want their parents to know. In one case, a sympathetic grandmother wired $10,000 to Mexico, thinking it would spring her granddaughter from jail. The woman was so embarrassed about the fraud that she never reported it, says Shirley B. Whitenack, a New Jersey attorney familiar with the details, who is also president of the National Academy of Elder Law Attorneys.
The types of fraud perpetrated against the elderly range from these Facebook-like cons to the reallocation of an older person's money for a caretaker's personal use—and they are all on the rise.


THE COST OF FRAUD
Financial exploitation of older Americans is one of the fastest growing forms of elder abuse as the nation shifts toward an older society, according to Bob Blancato, national coordinator of the Elder Justice Coalition, a national advocacy group in Washington, DC, and other experts on aging-related trends. Estimates of fraud-related losses and costs range from $2.9 billion a year to as high as $35 billion a year, he says. But the extent of the abuse is unclear. Government statistics on fraud are hard to find, and those who work with older people say not everyone goes to the police. “In many cases, it's not reported,” says Whitenack. “There's a lot of shame, both on the part of the victim and on the part of the relatives of the victims, because they feel they should have caught it sooner.”
“Everyone is at risk for being financially exploited as they get older,” says Kathleen M. Quinn, executive director of the National Adult Protective Services Association. A Baby Boomer herself, Quinn says older people, in general, can become more vulnerable as the brain ages and the ability to focus and retain memories declines.


VIOLATION OF TRUST
Blancato says data suggest the typical victim is a woman between the ages of 75 and 80 who is living alone—a sizable population, considering that 47 percent of all women 75 or older now live by themselves, according to the US Census Bureau.
“Somewhere along the line, someone establishes their trust and then violates that trust,” says Blancato. Typical victims have other contributing circumstances, such as dementia, that can make them inviting targets for abuse or vulnerable to simple crimes of opportunity.
A recent study found that people with mild cognitive impairment may be more susceptible to financial scams, particularly because of slowing perceptual speed and weakened episodic memory. The study, conducted by researchers at the Rush University Medical Center's Memory and Aging Project in Chicago and published in the October 2015 edition of the Journal of Alzheimer's Disease, noted that even subtle cognitive decline can make it easier for people to fall prey to such exploitation.


LOSS OF FUNDS
The effects of financial abuse can be devastating. One study found that 9 percent of proven victims of exploitation had their savings wiped out and had to rely on Medicaid or move to a public nursing home. Meanwhile, programs designed to help older Americans have lost funding. For example, from 2007 to 2012, almost half of state adult protective services programs had their budgets cut while caseloads continued to grow, says Quinn.


SIGNS OF CHANGE
Policy makers, businesses, and advocates for older people or people with cognitive decline are starting to pay attention, says Beth A. Kallmyer, vice president of constituent services at the Alzheimer's Association. For example, the Financial Industry Regulatory Authority (FINRA), a private self-regulatory organization, recently proposed a set of rules addressing the exploitation of seniors. Among other rules, a firm could put a temporary hold on the disbursal of funds from an older person's account if the firm has a reasonable suspicion that a fraud is taking place.
The federal government is also taking notice. In 2010, Congress passed the Elder Justice Act as part of the Affordable Care Act to allocate federal resources toward identifying, documenting, and fighting elder financial abuse. Quinn says a new voluntary reporting system for states is intended to improve documentation of financial exploitation. In Washington, DC, the City Council is considering legislation that would allow the government to take civil or criminal action against people who use “undue influence” to take advantage of a vulnerable older person. Private industry has stepped up too. EverSafe, for example, is an online service that uses technology to monitor a senior's financial accounts for excessive withdrawals, missed deposits, or changes in spending habits.
Commercial banks have also taken steps to address the problem. Their employees are often in the best position to identify signs of a scam, but privacy laws can hinder them from alerting family members. Banks have to balance privacy concerns with security, says Robert G. Rowe III, vice president and associate chief counsel of regulatory compliance at the Center for Regulatory Compliance of the American Bankers Association (ABA). He says there is no federal standard for the industry on reporting elder financial abuse.

In general, banks are required to report irregularities to the Treasury Department if they suspect fraud, says Rowe. In practice, however, banks mostly focus on transfers that appear related to money laundering and other such crimes. It's harder to intervene when a banker believes an elderly customer is being scammed. “You don't want a banker assessing someone's competence,” he says.
Some banks now offer “protected accounts” that allow third-party monitoring, Whitenack says. Such accounts allow an older person to give someone else—a sibling, say, or an adult child—transparent access to an account, but without the ability to execute transactions. The ABA singled out the Bank of American Fork, in American Fork, UT, for its educational programs and “view-only access” accounts that allow a third party to watch for fraudulent activity without giving them control of those accounts. “Little by little, you start to see steps in the right direction,” Blancato says.


9 Ways to Short-Circuit a Scam

THESE EXPERT TIPS can help you protect a parent or other family member from being exploited. For more information, contact the Alzheimer's Association at http://bit.ly/Alz-Abuse or call their helpline at 800-272-3900. Social workers on staff can help. You can also find helpful advice on the Consumer Financial Protection Bureau's website at http://bit.ly/FinanceProtection.

1. Discuss the topic. Talk to your parents or elderly relatives about the risks of financial exploitation, says Beth A. Kallmyer of the Alzheimer's Association. You might tell your parents that precisely because you want them to remain independent for as long as possible, it's wise to put you or another trusted third party on their accounts or grant other monitoring access. Be sure to set up regular financial consulting sessions.
2. Look for evidence. When visiting an older family member or someone who is vulnerable, pay attention to sweepstakes tickets or promotional envelopes lying around, and, if you are in a position to do so, determine if any missing checks from their checkbook are not accounted for, says Kallmyer. If the telephone is ringing more often, that too could be a sign that an aging parent or relative has been targeted for financial exploitation.
3. Discourage business over the telephone. Instruct your parents or elderly relatives to ask callers to send information about their offers or proposed financial transactions in writing, says Kallmyer. You could also customize caller ID on your relative's telephone to block unidentified calls. “Keep in mind, though, that many scam callers use fake numbers so these services won't pick up on those numbers and block them,” says Meredith Ponder of the Elder Justice Coalition. “However, every bit helps. Any calls that can be blocked from scammers reduces the risk.”
4. Talk to the bank. Consult with your relative's financial institution about steps it can take to help keep your family member safe. More and more commercial banks allow third-party monitoring of checking or other accounts.
5. Establish checks and balances. Involve more than one other person in your parents' or adult relative's finances. If, for example, two adult children or siblings oversee transactions, talk to your parents about also appointing a trusted third party (a local pastor or other religious figure, a childhood friend, a trustworthy financial advisor or lawyer). No safeguard is foolproof, but having backup for all accounts and transactions may dissuade or deter unscrupulous behavior.
6. Obtain durable powers of attorney. Talk to your relative about giving you durable power of attorney so you can help him manage his finances and look out for fraud. These sworn agreements govern the types of financial transactions that can be performed on another person's behalf, says Kathleen A. Quinn of the National Adult Protective Services Association. A power of attorney can be tailored as broadly (writing checks, buying or selling property) or as narrowly (handling one real estate transaction) as is necessary. Unlike a regular power of attorney, a durable power of attorney survives when its creator is incapacitated. Agreements can be limited to paying bills or carrying out other financial transactions while shielding or limiting access to other assets. To safeguard against someone abusing the power of attorney, an agreement can include provisions requiring third-party monitors, such as another sibling.
7. Become a co-signer. Ask your relative to set up joint banking or investment accounts with you as the co-signer, Kallmyer advises. As a co-signer, you have access to those accounts and can ensure that no one is taking advantage of your elderly family member, especially if he or she has dementia or another cognitive ailment. Seeing overdrafts, double payments, and other problems is often one of the first clues that someone is having cognitive difficulties. It's not easy because many people are private about their finances, but broaching the topic tactfully—and approaching the issue together—can help a person cooperate.
8. Encourage regular contact. A major risk factor for any kind of elder abuse is isolation, Quinn and other experts say. Make sure an aging or vulnerable family member has regular contact with people, perhaps by enrolling in community adult-care programs or social groups. Quinn recommends making regular visits and hiring an aide to check in on an aging relative.

9. Hire caregivers through licensed agencies. If your parents need in-home care, always use a licensed or certified agency, if possible, says Quinn. No national organization certifies eldercare aides yet, but some states do. Of course, nothing is fail-safe, but accredited or certified agencies are generally more accountable. “You can find out if the agency does background checks, or if they've had any actions against them,” Quinn says. “If you hire somebody off the Internet, you have to go with what they tell you, unless you can do your own background check.” The National Alliance for Caregiving, which does not certify or accredit agencies, offers various guides to help you find assistance at http://bit.ly/ElderCareAgency.

http://journals.lww.com/neurologynow/Fulltext/2016/12030/Stop_the_Scam__Elderly_parents_or_family_members.17.aspx

Beat the Heat: Warm temperatures can make some neurologic symptoms worse.

DON'T FORGET TO WEAR SUNSCREEN-HAT-SUNGLASSES AND PLENTY OF WATER

Kritz, FranJune/July 2016



Here's how to keep your cool this summer.


Heat can play a role in epileptic seizures or migraines. It can exacerbate symptoms of multiple sclerosis (MS) and cause overheating in people with spinal cord injuries and brain tumors, whose ability to regulate their body temperature may be compromised by their condition. It does not, however, cause further neurologic damage, says Robert Fox, MD, FAAN, medical director at the Mellon Center for Multiple Sclerosis at Cleveland Clinic.
Heat sensitivity also can be managed, says Gil Greenman, an attorney in Seattle, who has MS and is extremely sensitive to the heat. “If the temperature goes above 69 degrees, I feel the symptoms all over,” he says. “My hands and legs prickle and get numb.” If the mercury climbs too high, he may even pass out.
So over the years, Greenman has adopted strategies for cooling down when the heat strikes. For one, he's never without his “cooling kit,” which includes a cooler filled with ice packs, wet bandanas, and cold towels. He also carries a battery-powered fan, a water bottle, and an umbrella to protect him from the sun, and he constantly seeks shade. Greenman and our experts offer these additional tips:

1. TALK TO YOUR DOCTOR. If you're sensitive to the heat, discuss all your options with your doctor. Certain activities may still be possible as long as you take precautions.


2. EXERCISE WISELY. Avoid working out during the hottest part of the day and wear layers you can peel off, says Dr. Fox. If you're exercising indoors, keep a fan turned in your direction. Avoid Bikram or hot yoga and similar exercise environments in which the room temperature is intentionally raised.

3. STAY HYDRATED. Keep a bottle of cool water at home and at the office and drink from it throughout the day. Be especially mindful of staying hydrated when exercising. Your body needs water to sweat out to cool itself down, explains Anthony Reder, MD, FAAN, professor of neurology at the University of Chicago.

4. DRESS APPROPRIATELY. Choose lightweight and light-colored fabrics to ward off heat, and wear a hat to shade you from the sun, says Dr. Reder.

5. COOL YOUR BODY. Put your feet in a bucket of ice, or fill a spray bottle with water and spritz yourself every so often. Greenman says some people wear “cooling vests,” garments with pockets for cooling packs, but he finds them uncomfortable and prefers to douse himself with water. Or place a small bag of ice or a cool washcloth on your neck, says Dr. Reder. “That can be just enough to cool you down and help you function much better.” Other cooling garments include headbands, scarves, and spine or ankle wraps.

6. SEEK COOL PLACES. Air-conditioned stores can be your best friend when out running errands. The same is true of an air-conditioned car. That solution works for Greenman whenever he's feeling overheated.

7. AVOID THE OUTDOORS WHEN IT'S HOT. Schedule your day so you're not caught outside when the temperature is highest, says Orrin Devinsky, MD, FAAN, professor of neurology, neurosurgery, and psychiatry at New York University School of Medicine and director of the NYU Comprehensive Epilepsy Center in New York City. He urges people who are sensitive to heat to create strategies that still allow them to enjoy themselves while lessening the risk of overheating. If you like the beach, for example, visit it in the early morning or late afternoon and bring an umbrella and lots of cool drinks. “Do everything you can to keep your core body temperature from rising,” he says.

http://journals.lww.com/neurologynow/Fulltext/2016/12030/Beat_the_Heat__Warm_temperatures_can_make_some.13.aspx