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Monday, April 20, 2015

Rudeness and hostility blight lives of 69,000 with Parkinson's


An estimated 69,000 people in the UK with Parkinson's have experienced hostility and rudeness from members of the public, we reveal today on the first day of Parkinson's Awareness Week.
It's devastating to see the added burden thoughtless reactions from the public are having on people with Parkinson's.
Professor David Burn, Parkinson's UK Clinical Director
We asked people with Parkinson's about their experiences. A third have been stared at, a quarter have had symptoms mistaken for drunkenness, and one in ten have been laughed at because of their symptoms. 
With 46% of people with Parkinson's experiencing depression and 62% suffering from anxiety, clinicians warn these insensitive public reactions could be wreaking untold damage on the mental health of people with Parkinson's.

Making a difference to someone with Parkinson's

Professor David Burn, our clinical director, warns:
"It's devastating to see the added burden thoughtless reactions from the public are having on people with Parkinson's.
"Patients I see in the clinic are already battling a myriad of neurological symptoms including anxiety, depression and insomnia. The last thing they need is to feel like a zoo exhibit when they step out of their front door.
"Understanding, patience and empathy can make the difference to someone with Parkinson's as to whether they feel imprisoned in their own home, or confident to go out in public."

Richard and Karen's story

Karen Wenmouth, 47 from Stoke in Coventry, whose husband Richard, 33, was diagnosed with Parkinson's at just 26, says:
He just wishes the public were more understanding.
Karen, whose husband Richard has Parkinson's

"When Richard was first diagnosed he had a lot of trouble walking – he wasn't able to control his arms and legs, and was extremely self-conscious in public.
"Once we were coming out of a restaurant and two twenty-something men started laughing and pointing.
"I told them that he had Parkinson's and they apologised, but the damage to Richard was already done.
"He just wishes the public were more understanding – and not judgemental when he's slurring his speech and shuffling around. It's not because he's drunk. I think it's particularly hard for him because he's a young man."

Up your friendly

Parkinson's Awareness Week 2015 stickersDuring Parkinson's Awareness Week we're challenging the public to 'up your friendly'. Being patient and kind can make all the difference to people with Parkinson's.
Take the up your friendly challenge at upyourfriendly.com

Use the hashtag #upyourfriendly. Share, retweet, spread the word.

- See more at: http://www.parkinsons.org.uk/news/20-april-2015/rudeness-and-hostility-blight-lives-69000-parkinsons#sthash.q6sl4ILA.dpuf


http://www.parkinsons.org.uk/news/20-april-2015/rudeness-and-hostility-blight-lives-69000-parkinsons

One in four Parkinson's cases mistaken for being drunk



A quarter of people with Parkinson's have symptoms 'mistaken for drunkenness'

20 April 2015 Last updated at 08:15 BST 
On average, someone in the UK is told they have Parkinson's disease every hour. It is a condition that affects the brain - slowing movement and causing tremors. 
According to a new study, a quarter of people with Parkinson's say they have had their symptoms mistaken for drunkenness. 
The charity Parkinson's UK says many people with the disease find themselves being stared at - or laughed at.
The charity is calling on the public to show more patience and understanding.
Jayne McCubbin has been to meet people affected by the disease. 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
A survey of UK people with Parkinson's has shown a quarter of them have had their symptoms mistaken for drunkenness.
The figures from the charity Parkinson’s UK also showed that around 1 in 10 people (11 per cent) with the condition have been laughed at because of their symptoms.
Around 127,000 people in the UK are affected by Parkinson’s – a degenerative neurological condition which causes tremor, rigidity and slowness of movement – and it is estimated that 69,000 of them have experienced some form of hostility or rudeness from members of the public.
Of the 2,140 people surveyed, 32 per cent reported being stared at when displaying symptoms, and of those who experienced negative reactions or discrimination, 45 per cent said it made them feel “inferior”.
Over a fifth of them (22 per cent) said the hostility made them feel “invisible”, while 36 per cent were “intimidated”.
There were also 19 per cent respondents who admitted they would rather skip a meal than go to the shops and risk experiencing negative reactions, whereas 15 per cent claimed they felt “trapped inside their own homes”.
Prof David Burn, Parkinson’s UK clinical director and consultant neurologist said: “It is devastating to see the added burden thoughtless reactions from the public are having on people with Parkinson’s.
“Patients I see in the clinic are already battling a myriad of neurological symptoms including anxiety, depression and insomnia.
“The last thing they need is to feel like a zoo exhibit when they step out the front door.”
The report's publication marks the beginning of Parkinson’s Awareness Week, in which the charity is urging members of the public to perform small acts of kindness for those with the disease.
Steve Ford, chief executive at Parkinson’s UK, said: “By signing up to our new campaign with a small pledge – to smile or be that bit more patient – you can have a real impact of the lives of people with Parkinson’s.”

http://health.einnews.com/article/261027702/JRK9RkMaqzxw-zZ9

Sunday, April 19, 2015

Exploring New Targets for Parkinson’s Therapies

FoxFeed Blog


Posted by  Maggie McGuire, April 10, 2015
Exploring New Targets for Parkinson’s Therapies
Our portfolio of funded projects touches on many familiar targets such as alpha-synuclein and LRRK2. We’re always on the lookout, though, for the next big thing in Parkinson’s drug development. A number of recent grants went to projects exploring new avenues that may be the key to stopping Parkinson’s progression.
Learn more about the more than 450 active projects that MJFF is supporting on our Funded Grants page.
Stopping Cellular StressMatthews O. Bradley, PhDSAJE Pharma, LLCDrugs developed by this Baltimore-based biotech target an enzyme that plays a role in oxidative stress, a process linked to Parkinson’s disease. Oxidative stress is the build-up of free radicals, products of oxygen metabolism. Researchers are testing which of their drugs are able to enter the brain and whether those compounds have an impact on Parkinson’s disease models.
Cornering a Cancer GeneXiqun Chen, MD, PhDMassachusetts General HospitalPeople with Parkinson’s disease are more likely to develop melanoma. Conversely, melanoma patients are at higher risk of developing Parkinson’s. This bidirectional link suggests a shared genetic basis for these two seemingly distinct conditions. These scientists are studying a melanoma-related gene to evaluate its role in the survival or degeneration of dopamine neurons. Targeting that gene may have neuroprotective effects.
Targeting a Trafficking ProblemValérie Legendre-Guillemin, PhDUniversité du Québec à ChicoutimiA cellular process called vesicle trafficking delivers proteins where they need to be to perform their normal functions. Genes involved in this process have been associated with Parkinson’s disease. This study is investigating one of those genes and its relationships with known targets alpha-synuclein and LRRK2. Understanding this network of interactions will help to better focus therapies and potentially highlight a new target.
Halting Iron OverloadPier Giorgio Mastroberardino, PhDErasmus University Medical CenterIron is an element naturally present in the brain but excessive amounts, as observed in Parkinson’s disease, are toxic. Approaches to block iron accumulation could lead to promising therapies; it is still unclear, however, which of the specific proteins that control iron levels in the brain should be targeted by these therapies. This project from researchers in the Netherlands is testing a particular protein controlling iron to determine if it is a valid therapeutic target.
While these studies are still in the laboratory, there are many clinical studies recruiting volunteers. Register with Fox Trial Finder to be matched with studies in your area looking for participants like you.
https://www.michaeljfox.org/foundation/news-detail.php?exploring-new-targets-for-parkinson-therapies&utm_source=social&utm_medium=facebook&utm_content=researchnews&utm_campaign=fundedgrants-april&s_src=MJFFfb&s_subsrc=fundedgrants-april#prclt-cWl14GLD

Saturday, April 18, 2015

National Parkinson Foundation Partners With Country Artist Doug Briney On "Parkinson's Song"

Parkinson's Song








Website:  http://www.dougbriney.com/
Nashville-based country music artist, Doug Briney and the National Parkinson Foundation have partnered for the release of Briney's "Parkinson's Song." Briney will donate a portion of the single's sales to the organization, and he will perform at live events, benefiting Parkinson's. "Parkinson's Song" was written by Briney and Howie Garoutte, a Parkinson's survivor. It was recorded at SweetSong Nashville with producer, Dennis Money (Dolly Parton, Bill Anderson.) The single is available for preview and download on itunes, amazon, and all major online retailers. It can also be downloaded from Briney's website at http://www.dougbriney.com.

Parkinson’s disease is the second most common neurodegenerative disease after Alzheimer’s, affecting about one million people in the United States and an estimated four million worldwide. The Center for Disease Control rated complications from Parkinson’s disease as the 14th leading cause of death in the United States. The prevalence of the disease is expected to increase substantially in the next 20 years due to the aging of the population in the U.S., Europe and globally, as well as an increase in the age-related incidence of the disease. The economic burden of Parkinson’s disease is estimated to be over $14 billion annually in the U.S. — $8.1 billion in medical expenses and $6.3 billion in indirect costs attributed to Parkinson's disease.

For over half a century, the National Parkinson Foundation (NPF) has focused on meeting the needs in the care and treatment of people with Parkinson’s disease (PD). NPF has funded more than $189 million in care, research and support services.

In each of their research, education and outreach programs, NPF is dedicated to promoting their passionate belief that the best care is a comprehensive approach that addresses the whole person and the full range of symptoms of the disease, while continuously searching for the next insight that will change the course of this devastating disease. For more information, visit http://www.parkinson.org.

Doug Briney is a Nashville-based country artist and pastor. Signed with Tate Music Group, Doug has released two albums, It’s All Country and Super Country Cowboy. He is an Award-winning artist who has toured the country from Alaska to Alabama, winning an Independent Country Music Association Award for Best Live Performance and Best Video at the International Music and Entertainment Association Awards. He has appeared at CMA Fest, Hard Rock Cafe Nashville, Silver Dollar Saloon, Nashville Palace, Iditarod (Alaska), and the Alaska State Fair, performing alongside Bobby G. Rice, Georgette Jones, Ashton Shepherd, Billy Yates, Lulu Roman and many others. He is a Musicians On Call artist, performing for patients in Nashville hospitals. Doug is currently climbing the airplay charts with "Pretty Big Deal." For more information, visit http://www.dougbriney.com.


http://health.einnews.com/article/260699730/5EukxwoUEwWqSUFz

Michael J. Fox on Parkinson's Awareness Month - David Letterman




Michael J. Fox made his 41st and presumably final appearance on "Late Show With David Letterman" on Wednesday. And as with many of the final round of guests on the late night show, he didn't have anything in particular to promote so much as to have a final chit-chat with Letterman, who retires in May.

Fox, who was diagnosed with Parkinson's disease in 1991, spoke candidly about the moment when his doctor informed him he had the degenerative nervous system disorder.
"It was scary," he said. "I was 29 years old and so it was the last thing I expected to hear. I thought I'd hurt my shoulder doing some stunt because I had a twitch in my pinkie. And the doctor said 'You have Parkinson's disease.' He said, 'The good news is that you have 10 years of work left.'"
But as Fox proudly announced, he's managed to keep going for more than 20. He even had a new series, "The Michael J. Fox Show," which aired for a season on NBC in 2013.

Fox, whose Michael J. Fox Foundation is working to discover more clear-cut biomarkers to diagnose people with the disease before they start to display symptoms, was amazed that the way it's diagnosed is still akin to taking a drunk driving test.
 
 http://health.einnews.com/article/260768256/azxXdBUZcBBuv4Gm

Traveling on a Flight with Parkinson's disease



Question: My elderly father flew on PenAir from Boston to Presque Isle, Maine. I phoned the airline ahead of time to ensure he would have wheelchair service. He has Parkinson's and is unable to walk any significant distance and the disease has affected his cognitive functions to a degree. 
On his return trip from Presque Isle to Boston, he approached the ticket counter on foot and due to the close proximity to the gate he was not offered a wheelchair. He had a small, wheeled suitcase as his carry-on, but due to the small size of the PenAir plane it could not be brought into the cabin. When the agent checked him in, she handed him a small ticket that she said was to be used for retrieving his carry-on luggage when he arrived in Boston and took his suitcase away. He then went through security screening and waited at the gate.
During the flight, an agent at PenAir from Presque Isle phoned me to tell me that my father had left his luggage behind. We determined that while his medication was not left in the bag, his hearing aid was. My father is unable to hear without use of his hearing aid. I worked to set up an overnight delivery of the bag and the PenAir agent was kind enough to deliver it to the UPS office after I faxed over the shipping label.
The total cost of shipping his luggage to California was $237. I am requesting a refund for this expense. My father was under wheelchair assistance request and as such, I would hope that the airline would assist with his boarding, including assuring that he brings his bags on board. I believe the ultimate responsibility for the safe passage of my father and his single carry-on item rests with PenAir. Can you help me get reimbursed for the cost of shipping his carry on?
— Liz Chassé-Crouse, Sacramento, Calif.
Answer: Chassé-Crouse tried ahead of time to ensure her father's long travel day would be as easy as possible by requesting wheelchair assistance from PenAir, a commuter airline with hubs in Anchorage and Boston. That's a free service that PenAir and other airlines offer travelers who need additional help transiting the airport. The service would have helped him manage his luggage, too.
"A passenger requiring wheelchair assistance has the option of holding onto their carry-on (in their lap while in the wheelchair) or our agent can assist in getting the bag to the security checkpoint, and onto the aircraft," says PenAir's chief operating officer, Dave Hall.
But while airlines will provide wheelchair assistance to anyone who has difficulty making it to the gate, they don't provide assistance to passengers who may have some cognitive issues, says disability travel expert Candy Harrington, author of several books on barrier-free travel.
And as it turns out, Chassé-Crouse's father was on his own once he left the check-in area. When PenAir reviewed Chassé-Crouse's complaint, the airline determined that her father had declined wheelchair assistance at Presque Isle. The distance from check-in to the Transportation Security Administration (TSA) security checkpoint is no more than 30 feet, according to the airline.
Getting an older parent to accept assistance can be challenging, according to Harrington, especially if they think it's only a short distance or that they don't really need the assistance.
"There is just nothing you can do to force a relative to use an airport wheelchair," says Harrington. "Sometimes it's like walking on eggshells."
Due to space limitations on the aircraft, PenAir required that Chassé-Crouse's father's gate check his carry-on, rather than bring it into the cabin. The check-in agent tagged the bag with the airline's blue carry-on label, and explained that he was to leave it planeside when boarding and to collect it upon arrival in Boston, but did not take the bag from him, according to PenAir. While waiting for TSA screening to start, Chassé-Crouse's father apparently forgot his carry-on in the lobby seating area.
Although every Parkinson's disease situation is unique, the stress of travel can make Parkinson's symptoms more pronounced, including cognitive issues, according to Linda Pituch, senior manager of patient services at the Parkinson's Disease Foundation.
Of course, the stress of travel leads people of all abilities to leave things behind. The TSA alone collects thousands of forgotten bags, cellphones, laptops, sunglasses and more from the 60 million people who fly each month. The catalog of misplaced items in airports and planes, hotels and rental cars can be downright bizarre -- and valuable.
Fortunately, Chassé-Crouse's father's left-behind bag was spotted in the Presque Isle airport by a TSA agent, who brought it back to PenAir.
From there, the normal procedure would have been to first do a security screening of the bag and then send it onward to his connecting carrier in Boston, according to Hall. But when a PenAir agent looked in the bag to identify it, she found that it contained items that the airline assumed he needed, says Hall. That included his hearing aid, without which he had trouble communicating.
In order to expedite delivery of the bag to the address Chassé-Crouse provided, and not just to the airport, PenAir worked with her to send it overnight. A PenAir agent even drove several miles to drop it off for delivery.
"If we had forwarded the bag via normal procedures, it wouldn't have gotten to the San Francisco airport for at least a day or more," says Hall.
PenAir agreed to take a second look at Chassé-Crouse's complaint, and offered to reimburse her for the $237 in shipping costs.
"We have made a special exception to cover the costs of shipping the bag," says Hall. "We care about our customers and are sorry Mr. Chasse left his carry-on item behind, and are happy to make this service gesture in shipping the bag."
How can you avoid trouble?
• Escort travelers with special needs all the way to the gate. Airlines can issue gate passes to parents bringing unaccompanied minors through security and all the way to the gate. Likewise, family members or companions can also conduct people who need assistance, such as elderly parents or spouses.
"This is authorized under the Aircraft Operator Standard Security Program and it's been our experience that it is usually approved and a rather seamless process," says TSA representative David Castelveter. The accompanying family member needs to request the gate pass from the airline and present valid identification. The airline runs the information through the TSA's Secure Flight program, and issues a gate pass. Airlines issue these gate passes, not the TSA, but the latter can help answer questions and facilitate the process with airlines. Travelers can contact the TSA at (866) 289-9673 or via e-mail at TSA-ContactCenter@tsa.dhs.gov.
• Discuss travel with the doctor. Travelers with Parkinson's disease may do better with medication adjustments on the day of travel, under the supervision of their physicians, according to Pituch. Timing travels well is also important, since Parkinson's symptoms can be worse at specific times of the day, she says.
• Attach a note to the ticket information of the traveler requiring wheelchair assistance. Describe his or her carry-ons in detail, so it's easier for attendants to keep track of luggage when the traveler with Parkinson's might not remember to share those details, says Pituch. Make sure luggage has contact information both inside and out.
• Call the Parkinson's Disease Foundation's toll-free Help Line for additional tips and support at (800) 457-6676.
• Go along for the trip. For some aging parents or travelers with cognitive issues, traveling alone may simply become too difficult. "There may be some resistance on the part of the parent to have someone accompany them, so my best advice is just to make it sound like it will be a fun trip for the both of you," says Harrington.
http://www.usatoday.com/story/travel/columnist/burbank/2014/12/03/traveling-with-parkinsons-disease/19789677/

Naples man with Parkinson's, wife plan to finish visiting state Capitols

Naples, Fla. - Jim Seitz and wife Grace


He and his wife, Grace, 76, want to finish a journey they began years ago when they first started visiting U.S. state capitol buildings. They have nine left to visit, and it will require they travel in a private plane.
Their story is the subject of a documentary Spirit of Naples (SON) Studios — a nonprofit entertainment group — is filming, titled “Now I Lay Me Down: The James D. Seitz Battle with Parkinson’s Disease.”
The Seitzes — married 54 years ago — said the movie is primarily to bring more awareness about Parkinson’s disease and hopefully raise money for research. April is Parkinson’s Awareness Month.
'It’s not to send us off to state capitals,” said Grace Seitz, a retired registered nurse. “That’s the story wrapped up around a documentary.”
The first state Capitol they visited was out West. They watched a parade in Reno in the early 1990s and drove the next day to Carson City, capital of the Silver State, about 30 miles south.
“It was kind of a fluke,” Grace said. “Jim said, ‘I’ll take your picture in front of the Capitol.’ And I said, ‘Why don’t we see the rest of them’ ?”
Capitols they have yet to visit are in Texas, New Mexico, Arizona, Ohio, Hawaii, New Hampshire, Vermont, Montana and Idaho. They have assessed each they have seen, and agreed that the most beautiful Capitol building so far is in Harrisburg, Pennsylvania. The ugliest? In Augusta, Maine.
They follow the same routine; arrive the night before and set out the next morning to take a photograph of the Capitol’s dome and take a picture of Jim in front of a statue.
“One of the best parts of this is driving through the states,” Grace said. “West Virginia was stunning.”
“Everywhere we’ve driven has been different,” he added. “Our country is just gorgeous.”
When he began showing signs of Parkinson’s in 2009, the journey stopped.

CLOSER TO A CURE
Parkinson’s disease is a degenerative disorder of the central nervous system. Motor symptoms of Parkinson’s result from the death of dopamine-generating cells in a region of the midbrain. The cause of this cell death is unknown.
Seitz is part of Parkinson’s research studies that have enrolled hundreds of patients. The research is through Mayo Clinic Florida in Jacksonville, and Seitz makes the more than 300-mile trek there once a year to have his blood drawn and to undergo other tests, such as a psychological assessment.
The National Institutes of Health in 1997 established a special program to study Parkinson’s and the Mayo research is part of that, said Dr. Zbigniew Wszolek, professor of neurology at Mayo Clinic Florida in Jacksonville.
The Mayo program is among three that have been continuously funded through the NIH, said Wszolek, a researcher for the last 30 years. Mayo Florida collaborates with the Universities of Pennsylvania and Washington in the program.
“Progress in Parkinson’s disease is unbelievable,” he said, referring to how scientists are learning more about the disease.
Wszolek pointed to scientists in recent years identifying the LRRK2 gene, with variants being associate with an increased risk of Parkinson’s. This one day may help identify biomarkers of Parkinson’s, he said. Biomarkers help to follow the progression of a disease, such as how diabetes patients with high blood sugar need more insulin, Wszolek said.
“We are very close to finding curative treatments of Parkinson’s disease,” he said. “We are very close to finding the biomarkers to help us diagnose this better.”
There are two types of Parkinson’s — classic and atypical — and Seitz has classic Parkinson’s, Wszolek said. Classic usually means the disease progresses more slowly, he said.
If anyone wants to have a better chance of preventing Parkinson’s, Wszolek has one word for them — exercise.
“The people who exercise have a slower progression of the illness,” he said.
Coffee has also been shown to help Parkinson’s cases with fatigue and may even help to prevent it, he added.

ACTIVE IN THE COMMUNITY
The Seitzes moved to Naples 32 years ago from Chicago. Jim Seitz is a native of Freeport, Illinois, and graduated from the University of Iowa. He served in the Air Force and, while stationed in Orlando, met Grace, who was a nursing student at the time, at a church young adult group in 1959. They wed in 1961.
He later began working for banks, moving to Southwest Florida for a job with Northern Trust Bank in 1983. Jim Seitz became active outside of work, serving on boards that included the Philharmonic Center for the Arts (now Artis—Naples); the Shelter for Abused Women and Children; The Community School of Naples; the Public Media Advisory Board at Florida Gulf Coast University; and the Naples Arts Association.
Jim Seitz also helped in 1985 to found Faith Lutheran Church in Naples, serving as its first president.
Dr. John Campbell, a Naples neurologist who has a special interest in movement disorders, said he first saw Seitz in 2013. Campbell said, when diagnosing Parkinson’s, he looks for four main symptoms known as TRAP — tremor, rigidity, akinesis (loss of voluntary muscle movements) and posture.
“Jim, like everyone else, has a progressive disease,” Campbell said. “It certainly has a effect that’s much more than motor symptoms. It can affect people’s personality.”
Seitz at his home, while discussing his disease, suddenly began to cry quietly when hearing a story about someone’s dogs that had died two weeks apart. Seitz apologetically said Parkinson’s has caused him to lose control of such emotions.
Campbell — whose office is off Goodlette-Frank Road in Naples — said he’s seeing more and more Parkinson’s cases but pointed out that people are living longer.
“It’s almost to the point now where I can see strictly Parkinson’s patients, there’s that many cases around,” said Campbell, medical director of the Parkinson’s Association of Southwest Florida.
He said he’s optimistic that a cure can be found one day. For now, though, doctors can prescribe medicine to treat the symptoms, he said.
And he agreed with Wszolek about one way to help prevent Parkinson’s.
“There’s pretty good data that vigorous exercise is the answer,” Campbell said. “That’s the only thing we’ve got right now.
“I always joke with people that it’s hard to hit a moving target. A lot of people think health descends from the clouds.”

‘NOT OVER AND DONE’
Filming continues on “Now I Lay Me Down,” and owners of a jet — Edd and Nina Hendee, who own Taste of Texas restaurant in Houston — have agreed to lend their plane so the Setizes can visit. If Jim and Grace can catch a flight from Naples to Houston, the Hendees have agreed to fly them to Austin, then to Santa Fe, New Mexico, and to Phoenix, and back to Houston.
To film in those cities in mid-May, the project would need $20,500 to cover costs such as film crew fees, transportation, housing, food and other expenses.
The Seitzes then would have six states left in which to visit.
The documentary will be narrated by Gregory Seltz, speaker of the Lutheran Hour radio program that’s on more than 1,350 stations. Kyle Saylors, the film director, has shot projects in more than 50 cities in the U.S. and in Africa, India, Ireland, Italy and elsewhere.
Rebeca Seitz of Naples, who will help produce the documentary, is the Seitzes’ daughter-in-law. She’s spearheading an effort as part of Spirit of Naples to bring a nonprofit, 120,000-square-foot, $42 million movie studio to Southwest Florida. Spirit of Naples studio would produce socially worthy movies, TV shows and other works, Rebeca Seitz said.
Filming of “Now I Lay Me Down” should wrap up in August, so they’re hoping to visit the state Capitols before then, she said.
They will enter the documentary in 2016 film festivals, including Sundance in Utah and Cannes in France, and hopefully the Naples International Film Festival in November, she said.
Rebeca Seitz said her father-in-law for years was physically and socially active, but Parkinson’s has all but ended that. She said it’s been tough to watch his health deteriorate.
“He mainly was a guy who always worked out and walked,” she said. “He’s always someone who has taken care of himself. It’s hideous. He’s always been the strong leader of this family and to watch his strength be taken away every single day is gut-wrenching.”
Jim Seitz needs daily medical care, and Sergio Gomez, a certified nursing assistant who is registered with Just Like Family Home Care in Naples and lives in Golden Gate, visits him daily. Gomez helps with everything from physical therapy to bathing to helping him eat and get dressed.
“Boy, if somebody can have a caretaker, a man’s man, that is so helpful,” Seitz said as Gomez sat nearby in the home.
Later, Seitz got up and walked out to his lanai, gazing out at the green golf course fairway next to their home on a sunny day.
“The thing I realize out of this is helping people who have Parkinson’s know it’s not over and done,” he said. “You have a lot of life to live.”
 
A PARKINSON’S PRIMER

What is Parkinson’s? It is a chronic and progressive movement disorder whereby vital nerve cells in the brain — called neurons — malfunction and die. Some of these dying neurons produce dopamine, a chemical that sends messages to the part of the brain that controls movement and coordination.

Who gets Parkinson’s? Most instances of Parkinson’s occur after age 50. But the illness does occur in people between the ages of 30 and 50 or, in rare cases, at a younger age. About 4 percent of people diagnosed with Parkinson’s are younger than 50.

How many people have it? About 7 million to 10 million people worldwide live with Parkinson’s. In the U.S., as many as 1 million people have it — which is more than the combined number of people diagnosed with multiple sclerosis, muscular dystrophy and Lou Gehrig’s disease. About 60,000 Americans are diagnosed with Parkinson’s each year.

How can you prevent from getting Parkinson’s? There is no known way to prevent Parkinson’s disease. However, research has shown that diet and exercise can make a different. People who eat more fruits and vegetables, high-fiber foods, fish, and omega-3 rich oils (sometimes known as the Mediterranean diet) and who eat less red meat and dairy may have some protection against Parkinson’s.

Where can I learn more? Go to WebMD.com, pdf.org, parkinsonsmovie.com or michaeljfox.org

Sources: Parkinson’s Disease Foundation, WebMD