On April 29, a bipartisan group of House Energy & Commerce Committee members released a second 21st Century Cures Initiative discussion draft.
The Parkinson’s Action Network (PAN) is excited that the draft includes the Advancing Research for Neurological Diseases Act, a provision that would create a data collection system for neurological diseases at the Centers for Disease Control and Prevention. The stand-alone bill (H.R. 292/S. 849), spearheaded in the House of Representatives by Reps. Burgess (R-TX) and Van Hollen (D-MD), is a top priority for the Parkinson’s’ community. Please show your continued support by urging your Members of Congress to support the Advancing Research for Neurological Diseases Act. Email today!
As you may recall, Chairman Upton (R-MI) released an initial draft of 21st Century Cures in January. On Thursday, April 30, the Health Subcommittee of the Energy & Commerce Committee will hold a hearing to discuss the updated draft.
The updated 21st Century Cures draft also includes provisions to:
- Increase funding for the National Institutes of Health;
- Incorporate the patient perspective in the discovery, development, and delivery process;
- Foster development of treatments for patients facing serious or life-threatening diseases; and
- Modernize clinical trials.
PAN staff is currently reviewing the entire draft and plans to continue working with the Committee as the process continues. Please stay tuned for updates
Go to: (To Read More)
http://parkinsonsaction.org/wp-content/uploads/2014/10/PAN-2.23.15-Senate-HELP.pdf
http://parkinsonsaction.org/pan-priority-remains-in-updated-draft-of-21st-century-cures/
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