The Michael
J. Fox Foundation for Parkinson's Research (MJFF) is one of 14 finalists
selected to attend the "Inspiring
Hope" Ideathon, an initiative to raise awareness of clinical
trial participation and develop solutions to address this critical need in the
research process. The Foundation was chosen for its submission around promotion
of its online clinical study Fox Insight, a platform for people with
Parkinson's disease and their loved ones to contribute health and wellness data
from their own homes to help shape research priorities toward better
treatments.
Members of the Fox Insight team will participate in a two-day
workshop hosted by the Center for Information and Study on Clinical Research
Participation and INC Research Holdings, Inc. in Boston on September 27 – 28 to
further develop and cultivate plans for enhanced recruitment of the study tool.
One winning project will be awarded $10,000 toward implementation of their
idea.
Across all diseases, 85 percent of clinical trials finish late
due to difficulties enrolling participants and nearly one-third of trials fail
to recruit a single subject. Leveraging technology to remove traditional
research participation barriers (such as geography, transportation, cost and
time), Fox Insight gathers user-generated data through digital questionnaires
and smart devices. MJFF will make de-identified study data available to the
scientific community to broaden understanding of the experience of Parkinson's
disease and inform patient-centric research priorities and therapeutic
discovery. Currently with 4,800 participants, the study aims to enroll an
additional 10,000 study participants in 2017.
"We're honored to have been selected as a finalist and to
be a part of a larger conversation around clinical trial participation
awareness. Many patients don't realize they have an important role to play in
research," said Sohini Chowdhury, senior vice president of research
partnerships at MJFF. "With tools like Fox Insight, we hope to engage more
people into the process and let them know they can help shape the research
conversation through their participation."
The Ideathon workshop will allow MJFF to collaborate with other
field-wide innovators to define advanced strategies for meeting this
recruitment goal. All finalists will present their refined project proposals to
a panel of judges, who will award the $10,000 prize at the end of the two days.
For more information about Fox Insight, visit www.foxinsight.org
About The Michael J. Fox Foundation for Parkinson's Research
As the world's largest nonprofit funder of Parkinson's research,
The Michael J. Fox Foundation is dedicated to accelerating a cure for
Parkinson's disease and improved therapies for those living with the condition
today. The Foundation pursues its goals through an aggressively funded, highly
targeted research program coupled with active global engagement of scientists,
Parkinson's patients, industry leaders, government research funders and regulators,
clinical trial participants, donors and volunteers. In addition to funding more
than $650 million in research to date, the Foundation has fundamentally altered
the trajectory of progress toward a cure. The Foundation increases the flow of
participants into Parkinson's disease clinical trials with its online tools Fox
Trial Finder and Fox Insight; sponsors a landmark international study to find
reliable and consistent biomarkers of Parkinson's progression; promotes
Parkinson's awareness through high-profile events and outreach; advocates for
state and federal policies that support medical research and increased access
to health care; and coordinates the involvement of thousands of Team Fox
members and grassroots volunteers around the world.
http://www.prnewswire.com/news-releases/the-michael-j-fox-foundation-selected-as-finalist-in-competition-to-raise-awareness-of-clinical-trial-participation-300333970.html?
No comments:
Post a Comment