Our Parkinson's Place: WITH VIDEO: Ohio considers creating Parkinson's disease registry to help researchers

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Monday, April 11, 2016

WITH VIDEO: Ohio considers creating Parkinson's disease registry to help researchers

By Marc kovac

Capital Bureau Chief

April 11, 2016

Columbus -- State health officials would compile information on Ohioans diagnosed with Parkinson's disease and related neurological disorders, under legislation introduced in the Ohio House.

HB 499 calls for the creation of a Parkinson's Disease Registry to gather demographic and other details about sufferers -- where they live, and their gender, age and ethnicity, for example.

One goal is help researchers and doctors better understand potential causes of the disease.

"Whatever we can do to help the quality of life of Ohioans in meaningful ways, there should be no hesitancy to be able to achieve that goal," said Rep. Cheryl Grossman (R-Grove City), a primary co-sponsor of the proposed law changes. "I believe this registry will be extremely beneficial to many individuals that are affected by Parkinson's disease."

Grossman and Franklin County Auditor Clarence Mingo, a Stark County native with Parkinson's, urged support for the legislation April 11 during a press conference at the Statehouse. Four other states (Utah, California, Nebraska and Washington) have comparable registries already in place.

"Parkinson's disease is the most prevalent neurological disorder in this nation," Mingo said. "We believe that nearly 1 million Americans walk with this disease. Astonishingly, what we don't know is out of that million, how many actually reside in Ohio/ We need to know that and understand what's happening here in the state of Ohio with those who live with Parkinson's disease."

The data also could be used to track other neurological disorders, some of which surface after Parkinson's diagnoses, Mingo said.

"Ultimately, this information will be shared and used to better diagnose movement disorders in general," he said. "If you're a neurologist or if you're a movement disorder specialist, the data we're gathering will be instrumental whether it's Parkinson's disease or another type of movement disorder that's common in America."

http://www.the-news-leader.com/latest%20headlines/2016/04/11/ohio-considers-creating-parkinsons-disease-registry-to-help-researchers