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Tuesday, November 1, 2016

Parkinson's Disease Foundation Offers Programs to Address Unmet Care Partner Needs During National Family Caregivers Month

November 1, 2016



In recognition of National Family Caregivers Month, the Parkinson's Disease Foundation® (PDF®), a division of the Parkinson's Foundation, is offering free resources to address unmet needs of care partners of people with Parkinson's disease.  PDF invites Parkinson's disease care partners and loved ones to access our free educational programs by visiting www.pdf.org/caregivers_month.

"The lives of Parkinson's care partners are forever changed by this disease," said Leslie Peters of Colorado Springs, CO, a member of the PDF People with Parkinson's Advisory Council who was a care partner to her late mother-in-law and whose husband lives with Parkinson's.  "Oftentimes, care partners are so focused on supporting our loved ones that our own needs go unaddressed.  PDF is here to make sure that doesn't happen.  I urge my fellow care partners to turn to PDF for information, support and resources to help ease the journey."
As the number of people living with Parkinson's disease increases — with the population expected to double by 2030 — the strain on family care partners is expected to rise as well.  In a recent PDF care partner survey, the majority of the nearly 900 respondents indicated that they are primary caregivers who receive little to no help in caring for a loved one with Parkinson's.  When asked about the areas in which they could benefit from greater support, resources or education, care partners pointed to stress management related to caregiving as a top concern, with many citing medical, insurance and legal issues as being particularly stressful.
In response, PDF is offering its annual caregiving online seminar on the topic of planning for the future.  PDF invites care partners and their loved ones with Parkinson's to join, "Parkinson's Disease: Financial, Legal and Medical Planning Tips for Care Partners," on Tuesday, November 8 at 1:00 PM ET, led by Martin M. Shenkman, C.P.A., M.B.A., P.F.S., A.E.P., J.D., Founder, Shenkman Law.  The webinar will provide practical steps to help care partners plan for the future.  Free continuing education units are offered to qualifying health professionals who participate live or within 30 days, via PDF's sponsorship of the American Society on Aging.
PDF invites care partners to access additional resources, including, "Coping Skills for Care Partners," and "Cognitive Issues: Advice for Parkinson's Care Partners," by visiting its online library and to request copies of free educational materials and find help locating community resources (including care partner support groups) by contacting our National HelpLine at (800) 457-6676 or info@pdf.org.
"At PDF, we often talk about mobilizing a team — in the research, health and patient communities — to help us end Parkinson's.  But without care partners, our work would be impossible," said Robin Anthony Elliott, CEO, PDF.  "Their efforts to improve the health and well-being of people with Parkinson's and advance the cure cannot be underestimated."
Learn more by contacting our toll-free National HelpLine at (800) 457-6676 or info@pdf.org or by visiting www.pdf.org/caregivers_month.  Interpreters are available in 200 languages.
http://sports.yahoo.com/news/parkinsons-disease-foundation-offers-programs-address-unmet-care-192200547.html

1 comment:

  1. My husband was diagnosed with early onset Parkinson's disease at 57.his symptoms were shuffling of feet,slurred speech, low volume speech, degradation of hand writing, horrible driving skills, right arm held at 45 degree angle, things were tough for me, but now he finally free from the disease with the help of total cure ultimate health home, he now walks properly and all symptoms has reversed, he had trouble with balance especially at night, getting into the shower and exiting it is difficult,getting into bed is also another thing he finds impossible.we had to find a better solution for his condition which has really helped him a lot,the biggest helped we had was ultimatehealthhome they walked us through the proper steps,am highly recommended this ultimatehealthhome@gmail.com to anyone who needs help.

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