November 29, 2017
NEW YORK and MIAMI, PRNewswire-USNewswire/ -- The Parkinson's
Foundation is pleased to announce $60,000 in funding
for six innovative patient-centered research projects. The awards, the
first of their kind in the Parkinson's community, support patient-scientist
teams in their efforts to develop innovative models of patient
engagement. The projects are supported through the Parkinson's Advocates in Research (PAIR) Leadership
Awards.
"As a leader in the patient engagement
space, we are proud to support researcher-patient teams who are developing
innovative ways of working together," said John L. Lehr, chief
executive officer of the Parkinson's Foundation. "It is more
critical than ever that we guide research to better meet the needs of our
community, and including patient voices is key."
PAIR Leadership Awards are an extension of Parkinson's Advocates in Research, a pioneering program
established by the Foundation to advance researcher-patient
collaborations. They reflect the foundation's commitment to targeting
research to meet patient needs by building collaborations between scientists
and people who live with Parkinson's disease (PD). Awards are available
for up to $10,000 for patient-centered research projects.
Among this year's awardees is a team from Emory
University School of Medicine, a Parkinson's Foundation Center of Excellence: Madeleine
Hackney, PhD, and Ron Wincek, a foundation research advocate who lives
with Parkinson's. Their project, "The DREAMS Team: Galvanizing Research
Participation in the Parkinson's Disease Underserved Community," aims to
train underserved older adults in the PD community to serve as advisers on
study teams and to aid recruitment efforts of underserved participants with PD
by local clinical trials.
"Over the years, our team has found that
patients have valuable and often surprising insights that can improve our work
in research, care and support," said Dr. Hackney. "I applaud the
Parkinson's Foundation for investing in our efforts to encourage research
participation in underserved communities."
2017 PAIR Leadership
Awards:
1. Development of a Virtual
Case Manager for People with Parkinson's Disease
Bastiaan
R. Bloem, M.D., Ph.D., Radboud University Nijmegen Medical Centre, Parkinson's
Foundation Center of Excellence, Netherlands
John Andrejack, Parkinson's Foundation Research Advocate
2. Optimizing Mindfulness
Based Stress Reduction Program for Accessibility, Feasibility, Comfort, and
Effectiveness for People with PD
Michelle
Burack, M.D., Ph.D., and Dan Kinel, University of Rochester Medical
Center, Parkinson's Foundation Center of Excellence
3. PAIRing up to Address
Neuropsychiatric Concerns in Parkinson's Disease
Jennifer
Goldman, M.S., M.Phil., Rush University Medical Center, Parkinson's
Foundation Center of Excellence
Don Simmonds, Parkinson's Foundation Research Advocate
4. The DREAMS Team:
Galvanizing Research Participation in the Parkinson's Underserved Community
Madeleine
Hackney, Ph.D., and Ron Wincek, Emory University School of Medicine,
Parkinson's Foundation Center of Excellence
5. An Investigation of
Tracking Technology in the Setting of an Established Exercise Program for
Individuals with Parkinson Disease
Sarah
Ingersoll, M.B.A., and Kris Mendenhall, University of Southern
California Keck School of Medicine
6. Assessment of Changes in
Gait Patterns during Cognitive and Visual Dual-Tasking using the Xbox Kinect
System
Joe
Signorile, Roberto Chen, University of Miami, Parkinson's Foundation
Center of Excellence
About the Parkinson's
Foundation
The Parkinson's Foundation makes life better
for people with Parkinson's disease by improving care and advancing research
toward a cure. In everything we do, we build on the energy, experience, and
passion of our global Parkinson's community. For more information, visit www.parkinson.org or
call 1-800-4PD-INFO (473-4636).
About Parkinson's Disease
(PD)
Affecting nearly one million Americans and 10
million worldwide, Parkinson's disease is the second-most common
neurodegenerative disease after Alzheimer's and is the 14th-leading
cause of death in the United States. It is associated with a progressive
loss of motor control (e.g., shaking or tremor at rest and lack of facial
expression), as well as non-motor symptoms (e.g., depression and
anxiety). There is no cure for Parkinson's and 60,000 new cases are
diagnosed each year in the United States alone.
SOURCE Parkinson's Foundation
Related
Links
https://www.prnewswire.com/news-releases/parkinsons-foundation-invests-60000-to-develop-innovative-models-of-patient-engagement-300563050.html
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