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Saturday, December 16, 2017
The uncharted emotional territory of gifting DNA tests to family
December 16, 2017 - bySARAH ELIZABETH RICHARDS
The family that spits together might not want to receive their health results together. In the new era of DNA testing, there can be tricky family dynamics.
For anyone thinking of slipping a popular DNA testing kit into a loved one’s holiday stocking this season, it may not be received in the same spirit in which it’s given. Experts warn that not all family members are interested in having their DNA mined for disease risks, and then sharing potentially upsetting health information.
“Some families are really open about sharing, and others aren’t,” says Anne Frankl, a genetic counselor at UnityPoint Health in Des Moines. “It’s an ethical conundrum if your family isn’t open. You’re wondering ‘Am I doing the right thing by telling people or not telling people? Am I being disruptive to their lives?’”
When Julie Gregory had her DNA analyzed by a testing company in 2012 and learned that she carried two copies of the gene that’s linked to Alzheimer’s disease, she tearfully told her family the news. She didn’t realize she inadvertently revealed a family trait they hadn’t been aware of: the AOPE4 gene is hereditary, and they were all potentially at risk.
Gregory, 53, of Long Beach, Indiana, rallied her family to get tested and learn about their risk so they might join her in healthy lifestyle strategies like taking fish oil, curcumin and vitamin D supplements, cutting back on sugar and refined carbs and exercising more.
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