October 1, 2016,
Welcome to Our Parkinson's Place
I copy news articles pertaining to research, news and information for Parkinson's disease, Dementia, the Brain, Depression and Parkinson's with Dystonia. I also post about Fundraising for Parkinson's disease and events. I try to be up-to-date as possible. I have Parkinson's diseases as well and thought it would be nice to have a place where updated news is in one place. That is why I began this blog.
I am not responsible for it's contents, I am just a copier of information searched on the computer. Please understand the copies are just that, copies and at times, I am unable to enlarge the wording or keep it uniformed as I wish. This is for you to read and to always keep an open mind.
Please discuss this with your doctor, should you have any questions, or concerns. Never do anything without talking to your doctor. I do not make any money from this website. I volunteer my time to help all of us to be informed. Please no advertisers. This is a free site for all.
Saturday, October 1, 2016
October 01, 2016
Tubby Raymond, former head football coach at the University of Delaware, had a patented expression he used to describe a slow and painful loss:
"It's like being bitten to death by a duck." How's that for a graphic portrayal?
The analogy was clear and excruciatingly accurate. And, unfortunately, it translates to the way I'm feeling these days as I battle the sinister disease Parkinson's.
Well-wishers continue to encourage me to keep fighting, and, for the most part, I do just that. But the disease is a lousy way to squirm out of helping my wife with the housework. And the alternative is unthinkable.
The fight is long and arduous and mentally draining because there is no cure and little hope for progress in that area in my lifetime. It is said "Parkinson's won't kill you." And while that's refreshing to hear, the cumulative effects are, quite candidly, a drain on the psyche. The buzz word appears in far too many obituaries to suit me.
I was diagnosed with the disease 17 years ago after enduring a litany of office visits to Parkinson's specialists and "essential tremor" explanations.
I also endured DBS (deep brain stimulation) surgery at Pennsylvania Hospital in 2003 to successfully eradicate the tremors that threatened to compromise my lifestyle.
The surgery didn't hurt — you're only mildly sedated and awake for most of it.
But while the procedure qualifies as a minor miracle, and continues to do so, I'm now linked indefinitely to a post-op battery-operated device that requires daily charging, or, if not properly tuned, will throw the user into a full-throttle abyss within a few days. When re-charged, there is a euphoric tingling sensation that permeates.
On the negative side, I find myself falling too frequently, usually forward, and have cuts and bruises on my knees and legs to show for it. For the most part, I manage to avoid the helter-skelter "welcome home, Bob" attacks staged by the dogs, although one failed defense resulted in my worst singular fall on steps bridging our bi-level. In that case, I broke a finger when I used my left hand to brace myself against the fall. That wasn't too smart, a lefthander breaking a finger on his left hand. While my finger heals, I've been attempting to type with my right hand. That's a lot of fun.
So I limp around with the aid a cane and tri-pod walker and have learned to avoid most perils that a Parkinson's patient routinely faces on a daily basis.
I still miss driving a car, although convinced taking myself off the road absolutely was the right thing to do.
On the plus side, my appetite is very good and I sleep well an average of nine hours a night.
My caregiving wife should have been a nurse. And my support base is terrific. I enjoy it when Jim Clark, who has had a far worse year than I, can easily figure out ways to keep me laughing at myself.
Every time my morale dips, I think of those whose physical maladies far out-weigh mine.
My struggles are intensifying. But as long as I'm able to wake up and write, how taxing can life be?
It is year number SEVEN and time for the Jeane Graves Charity Cupcake Challenge; a competitive bakeoff to raise money for charities’, including The Michael J. Fox Foundation, The event is Sunday October 16th at 2:00pm at The Heritage Center in downtown Vero Beach.
100% of event proceeds will go straight to funding Parkinson's research programs.
Laura Fiske, Lauren Williams, Jackie Williams, Greg Fiske, Jennifer Vogler, Laurisa Truemper, John Carlin, Jon Starr, Pat Gregory, Rachel Oliver, Steven Fields, and Jane Roe of Pedaling 4 Parkinson's in Denver, CO
To Purchase tickets or to Donate:
September 30, 2016
|Sky Sports presenter Dave Clark (third from the right), who lives with Parkinson's, with Parkinson's UK supporters on the beach at Robin Hood's Bay in North Yorkshire, after successfully walking 200 miles Coast to Coast in 13 days|
Friday, September 30, 2016
September 30, 2016 By Megan Sheppard
Early symptoms of Parkinson’s include a sensation of stiffness and weakness in the limbs, often accompanied by a slight trembling of the hand while it is resting.
Broad Beans are a natural source of Levodopa
Q. My husband has recently been diagnosed with Parkinson’s disease and we are willing to do whatever we can. Any information you could provide would be much appreciated.
A. Slightly more common in men than women, this condition affects around one in every 100 individuals over the age of 65.
It is not passed from one generation to the next.
Early symptoms typically include a sensation of stiffness and weakness in the limbs, often accompanied by a slight trembling of the hand while it is resting.
On a cellular level, the cells responsible for producing dopamine —which governs muscle activity — begin to degenerate, resulting in a drop in dopamine levels which then triggers an imbalance of other transmitters, such as acetylcholine.
Environmental exposure to pesticides or toxins is thought to be of significant concern in relation to Parkinson’s disease, which is why foods such as fruit, vegetables, seaweeds, fresh vegetable juice, sprouted grains, spelt, sunflower and pumpkin seeds are usually recommended as part of dietary therapy — all preferably organic.
Avoiding processed foods, coffee, tea, artificial sweeteners, sugar, tobacco and alcohol is strongly encouraged since they are over-stimulating to an already stressed nervous system.
Vitamin B6 (pyridoxine), found in bananas, beef, fish, liver, oatmeal, peanuts, potatoes, and whole grains, interferes with the action of Parkinson’s medication (usually called Levadopa or L-Dopa), so he may need to reduce his intake of these foods.
Broad beans, however, are a natural source of levadopa (half a cup contains around 250mg — equivalent to one L-Dopa pill).
Your husband will, of course, need to discuss any dietary changes or supplementation with his doctor.
Constipation is a common side-effect, but your husband should steer clear of bran as a solution to this problem since it is high in vitamin B6.
Prune juice and psyllium hulls are preferable as a natural solution. He should also drink plenty of pure water, around two litres daily, to help flush toxins and maximise nutrient absorption.
Hot spices are to be avoided, since they can trigger uncontrollable physical movements in some individuals.
High meat consumption aggravates the symptoms, and inhibits the uptake of vitamin B6, so a dietary ratio of 7:1 (carbohydrates:proteins) is usually advised.
The following supplements are believed to help with symptoms and side-effects of Parkinson’s:
* Gamma-aminobutyric acid (GABA), an amino acid that acts as a neurotransmitter, works by strengthening and relaxing the nervous system. Take 500mg, three times daily for three months.
* Calcium and magnesium are necessary for the nervous system — any supplement you choose should contain 500mg of calcium and 250mg of magnesium. Take twice daily.
* Green superfood supplements supply chlorophyll and essential trace minerals. Choose one that contains chlorella as this will bind to heavy metals and toxins so that they can be safely excreted. NAC (N-Acetyl-cysteine; 500mg, 2 x daily) is recommended if you know that heavy metal toxicity is a problem.
* Evening primrose oil contains valuable essential fatty acids, often deficient in those with Parkinson’s. Take 500-1000mg twice daily.
* The enzyme NADH (Nicotinamide adenine dinucleotide hydrogen) helps to improve neurotransmitter function. Take 25mg twice daily. Phophatidylserine is a lipid with similar properties — low levels of which are associated with the onset of Parkinson’s. Take 50mg, three times daily.
* Vitamin C. Ensure it is combined with bioflavanoids and begin with 1000mg, three times daily for a month, then increase gradually. n For support log onto parkinsons.ie or phone 1800 359 359.
September 30, 2016
Neurosurgeon Casey Halpern , MD, can't remember a time when he wasn't interested in the brain. Thanks to a mentor at the University of Pennsylvania, he was able to refine his interest and gain exposure to an actual brain surgery as an undergraduate.
Deep brain stimulation hooked this Stanford neurosurgeon
Why I Went into Medicine: Casey Halpern, MD
Almaz Ohene29 September 2016
More than 4,600 people from 67 different countries came together in Portland, Oregon, for the biggest event in the Parkinson’s calendar. We round up some of the highlights
The 5Kyoto, Japan World Parkinson Congress will take place from 2-7 June 2019 in
30 September 2016
Driven by the voice of people with Parkinson's
A big challenge
Who was Lewy?
In the early 1900s, while researching Parkinson's disease, the scientist Friederich H. Lewy discovered abnormal protein deposits that disrupt the brain's normal functioning. These Lewy body proteins are found in an area of the brain stem where they deplete the neurotransmitter dopamine, causing Parkinsonian symptoms. In Lewy body dementia, these abnormal proteins are diffuse throughout other areas of the brain, including the cerebral cortex. The brain chemical acetylcholine is depleted, causing disruption of perception, thinking and behavior. Lewy body dementia exists either in pure form, or in conjunction with other brain changes, including those typically seen in Alzheimer's disease and Parkinson's disease.
Copied from: https://www.lbda.org/content/diagnosis