Daylong Event Will Broadcast Live from Portland, Oregon
The
National Parkinson Foundation (NPF), a division of the Parkinson's Foundation,
will be hosting the first-ever Caregiver Summit, geared
specifically toward caregivers of people living with Parkinson's disease (PD).
The daylong event on September 19, 2016 in Portland, Oregon,
will bring together more than a hundred caregivers from all over the country
and the world.
"The
Caregiver Summit is a much-needed event for caregivers, who so often focus more
on the person with PD than on themselves," said Vaughn Edelson,
NPF Director of Education. "This event is one step of many NPF is taking
to better understand and address the needs of today's PD caregivers, while
informing new programs and approaches to support tomorrow's."
The agenda focuses on the dual role of all caregivers – caring
for the person with PD and caring for yourself, the caregiver – and includes
the following topics: maintaining dignity and identity; coping strategies for
living in the moment; and tools for family caregivers. One of the sessions will
feature a caregiver panel and there will also be opportunities for breakout
sessions in the afternoon. Each attendee will receive a complimentary copy of
the NPF Caring and
Coping workbook, to help caregivers prepare for every step of
the PD journey.
"I could have never imagined the impact that the Caregiver
Summit would have until I started reading caregiver stories from all over the
globe," said Julie Beck, Caregiver Summit Steering Committee member.
"The network of caregivers sharing ideas online spoke to the urgent and
pressing need for this type of event. We are all bonded together by being
caregivers of someone with PD. This event will offer support not only the day
of the event, but I believe it will have a lifelong impact on everyone who
attends."
ACADIA Pharmaceuticals Inc., is
the proud sponsor of the NPF Caregiver Summit, which will offer encouragement,
education and access to much-needed resources to those caring for people with
PD. ACADIA is focused on the development and commercialization of innovative
medicines that address unmet medical needs in central nervous system disorders.
The event will be held on Monday, September 19th – the day before the World
Parkinson Congress begins – at the DoubleTree by Hilton in Portland, OR,
from 9:00 am to 4:00 pm. There will be a Parkinson's Activity Room open
for people with PD to socialize while their care partners attend the Caregiver
Summit. Learn more about the event or register for the free webcast at www.parkinson.org/summit. Please call the
NPF Helpline with any questions about the Caregiver Summit, 1-800-4PD-INFO
(473-4636).
About the National Parkinson Foundation, a division of the
Parkinson's Foundation
The Parkinson's Foundation is working toward a world without
Parkinson's disease. Formed by the merger of National Parkinson Foundation
(NPF) and the Parkinson's Disease Foundation (PDF) in August 2016, the
mission of the Parkinson's Foundation is to invest in promising scientific
research that will end Parkinson's disease and improve the lives of people with
Parkinson's, and their families, through improved treatments, support and the
best care. For more information, visit www.parkinson.org or www.pdf.org, or call (800) 4PD-INFO (473-4636)
or (800) 457-6676.
About Parkinson's Disease (PD)
Parkinson's disease is a progressive neurological disorder that
affects nearly one million people in the US and over 10 million worldwide.
Parkinson's is the second most common neurodegenerative disease after
Alzheimer's and is the 14th leading cause of death in the US. It is
associated with a loss of motor control (e.g., shaking or tremor at rest and
lack of facial expression) as well as non-motor symptoms (e.g., depression and
anxiety). Although promising research is being conducted, there is currently no
cure for Parkinson's disease.
NPF Media Contact:
Leilani
Pearl
305-537-9907
http://www.prnewswire.com/news-releases/national-parkinson-foundation-hosts-caregiver-summit-300325720.html?
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