TRANSLATE

Welcome to Our Parkinson's Place


I copy news articles pertaining to research, news and information for Parkinson's disease, Dementia, the Brain, Depression and Parkinson's with Dystonia. I also post about Fundraising for Parkinson's disease and events. I try to be up-to-date as possible. I have Parkinson's
diseases as well and thought it would be nice to have a place where
updated news is in one place. That is why I began this blog.
I am not responsible for it's contents, I am just a copier of information searched on the computer. Please understand the copies are just that, copies and at times, I am unable to enlarge the wording or keep it uniformed as I wish. This is for you to read and to always keep an open mind.
Please discuss this with your doctor, should you have any questions, or concerns. Never do anything without talking to your doctor. I do not make any money from this website. I volunteer my time to help all of us to be informed. Please no advertisers. This is a free site for all.
Thank you.


Thursday, June 1, 2017

Survey Finds Parkinson's Disease Impact on Quality of Life Is Significant

PHILADELPHIA, PA--(Marketwired - June 01, 2017)





An accurate diagnosis for Parkinson's disease is often complicated and delayed by an array of symptoms resembling other conditions, according to a new survey from Health Union. 
The survey involved more than 1,100 individuals currently living with Parkinson's disease and was released through Health Union's newest online community, ParkinsonsDisease.net. It finds patients are frustrated in coping with and treating a complex condition that encompasses many diverse symptoms. 
As many as one million Americans are living with Parkinson's disease, a chronic disorder of the central nervous system that slowly worsens over time. Nerve cells in the brain die or become damaged, affecting levels of dopamine. It manifests with motor symptoms; such as diminished ability to move, tremors at rest, limb stiffness, and impaired balance. Non-motor symptoms may also be present, including reduced ability to smell, difficulty swallowing, pain, depression, and cognitive problems.
Survey respondents reported experiencing a variety of symptoms prior to diagnosis. Tremor or shaking was the most common at 72 percent. Other reported symptoms include: changes in walking or difficulty walking (42 percent), changes in handwriting called micrographia (40 percent), fatigue (37 percent), and reduced ability to smell (31 percent). Many of the symptoms, including tremor, can be present in other conditions, which can lead to misdiagnosis. About one-third of respondents initially received an improper diagnosis, including essential tremor (31 percent), depression/anxiety (27 percent), and benign essential tremor (15 percent).
"I was officially diagnosed at age 32, but I had begun to see symptoms at 29," said ParkinsonsDisease.net patient advocate Allison Smith. "I had difficulty getting a Parkinson's diagnosis because I was so young. When something was wrong, I was told I had injured myself or that I had overworked myself in graduate school. This is a frustrating time and you almost feel like you are losing your mind because the doctors can't figure out an accurate diagnosis."
On top of the difficulties they present for diagnosis, Parkinson's symptoms can make life extremely challenging; 80 percent of survey respondents saying they felt scared about their future. In addition, respondents had painful spasms or muscle cramps (59 percent), felt depressed (59 percent), had trouble concentrating (58 percent), and had trouble getting around outside their home (46 percent).
Parkinson's disease can take a physical and emotional toll on the patient. As well, Parkinson's disease can be overwhelming for caregivers or other family members, and they may not know where to turn for help.
ParkinsonsDisease.net caregiver contributor Angela Robb notes that "frustration can happen on many levels. For example, with facial masking, the lack of facial expression due to Parkinson's makes it extremely hard for caregivers, families, and loved ones to communicate effectively. One can literally think a loved one with Parkinson's is angry or sad because they cannot move their facial muscles or not hear them because of low speech volume."
"The results of this survey underscore the reasons Health Union launched ParkinsonsDisease.net earlier this year," said Tim Armand, President and co-founder of Health Union. "It is a privilege to provide a place where patients can get information and support for dealing with this life altering condition. In addition to meeting needs for patient support, ParkinsonsDisease.net provides specific resources for caregivers and family members."
"It's extremely important for caregivers and other loved ones to acknowledge that they need help," Robb added. Caregivers need to care for themselves. Joining an online community like ParkinsonsDisease.net is a great way to share your experiences and learn from others about coping with the stress of caring for someone living with Parkinson's."
An infographic series depicting the survey results is also available. Go to:
https://parkinsonsdisease.net/infographic/going-beyond-the-tremor-symptoms/
The Parkinson's In America 2017 survey was conducted online between January 19 and March 13, 2017. More details about the survey are available upon request.
About Health Union, LLC and ParkinsonsDisease.net
Health Union inspires people to live better with challenging health conditions - combining new, original content every day with digital, social and mobile technologies to cultivate active online health communities. Health Union platforms are unique ecosystems dedicated to illuminating the voices and experiences of people with type migraine, rheumatoid arthritis, type 2 diabetes, hepatitis C, and more. Its services and offerings foster open and honest interactions about these health conditions between and among patients, caregivers, professionals, providers and industry partners to help all stakeholders make more informed decisions about healthcare. ParkinsonsDisease.net is Health Union's online community dedicated to people living with Parkinson's, where patients and supporters of people living with this condition can connect, share experiences, and learn about managing the condition.

http://health.einnews.com/pr_news/384365850/survey-finds-parkinson-s-disease-impact-on-quality-of-life-is-significant?n=2&code=lAb0qDE0aV13cmUw

No comments:

Post a Comment